Dealing and Caring for elderly parents... Health concerns.... Needing some guidance...8/14 update

Lots of sympathy to you, OP, and to anyone else caring for elder family members. I cared for my grandmother until her death -- ironically six years ago today -- and I'm glad I was able to do it, but it was real work. My children were mostly in high school at the time, so they were able to help.
Have you reached out to Senior Services in their area? Is there a Meals on Wheels program that can bring meals to them?
Yes, excellent advice. Meals on Wheels was the most useful single thing we had for my grandmother. It meant that five days a week someone was in and out of her house bringing her a meal. In a twist of fate, her most constant "delivery girl" was a woman who'd worked for her as a nanny when my grandmother was a young working mother. The brief daily visit was as valuable as the meal, though she liked the food. She was small and as she aged she didn't eat as much, so the lunch typically was enough for her dinner as well. She always got a carton of milk and a carton of juice with her meal, and those really piled up in her 'fridge.

I don't know what senior services you might have in your area, but you probably have some sort of elder-transportation. My grandmother had the option to call a day ahead and say, "I'd like a ride to the grocery store mid-morning tomorrow", and a van would arrive to pick her up. She refused to use this service, saying it was "for poor people", but it was available.
The home health agency can have RN visits as needed (from daily, weekly, etc). These RN visits are usually weekly. They can arrange for home health aides to assist with cooking, cleaning, and personal care(if needed). They can schedule home physical therapy, home oxygen, any home aides needed such as walkers, wheelchairs with no cost to them. This is all taken care of by Medicare, which they have been paying most of their lives. There is no charge to them.
Yes, my now-RN daughter did this for a while during her college years. Comments:
- It's hit-or-miss as to whether you get a quality worker. My daughter was in high demand -- practically everyone whom she served requested to have her back. But apparently not everyone who works home health cares as much; if you get someone you don't like, you might have to "keep trying" 'til you get a good person.
- The main thing my daughter did was help with bathing /hygiene.
- The #2 thing she did was help with meal prep. She'd cut up veg, etc. and put it into the refrigerator so the patient could cook a quick meal later.
- She occasionally did "heavy cleaning" like stripping the bed /putting sheets into the washer or running the vacuum cleaner.
- Something she said about a brother/sister who lived together struck me as smart: She was the home health worker for the brother, but the sister also had a worker. The siblings each had care 2Xs a week, and they staggered their visits so they had someone doing food prep for them on a fairy constant basis.

If money allows, you might hire someone from Care.com to come in weekly /bi-weekly to clean and do laundry. This would remove some weight from your shoulders and would allow your time with your parents to be "real visits" rather than work sessions.

Are your parents doing okay managing their money? At some point it might be wise to get control of their accounts, have their bills sent to you and pay them yourself. If they "fall behind", they might end up owing big fees.
He then got sick with bronchitis, which turned into something worse (because he wasn't taking care of himself). He ended up in the hospital and it all went downhill from there and he passed.
Sadly, I think that's a very common story: He was fine 'til something small happened, and then his health spiraled downhill. It's what happened to my grandmother too (not bronchitis, but something similar).

Do you have access to their medical records /doctors? You should. Sometimes elderly people don't hear everything that the doctor says -- or purposefully don't want to remember everything they were told to do.
It will take an emergency situation to land one of them in the hospital etc and then you will let them know they are not going back home and will be moving into assisted living. You have that power and authority to do so. It will not be their decision at all. You are seeing a big decline and things will fall like dominoes when this time comes.
You and your family would be wise to have a plan in mind: When one of your parents becomes suddenly ill and/or goes into the hospital, afterward he or she will come home to _____'s house. _____ will take care of transportation to and from the doctor. _____ will support these main caretakers by ______.

If the family has a plan in mind, it won't be quite so difficult when something happens. It's not a matter of whether they'll have a medical emergency, it's a matter of when /how bad.
I'm sorry too. I sounded snippy. Probably because I have been down this road with elderly people. They can sometimes be very manipulative and quite abusive to their children and randchildren.
Yes. My grandmother was a wonderfully sweet woman, but occasionally in her later years she bit out at me with a venom I never saw in her before. I know it was a matter of being frustrated with her declining physical abilities, but sometimes she made me cry.

She also lied to us occasionally about having fallen. I didn't think she would have done that, but we saw evidence in the form of bruises, and once or twice we saw her fall.
 
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When we all arrive at this juncture (Which we will if we're lucky) will we be any different. I hope I will be:)
 
I could write a novel, but I'm going to stick to suggestions on how to broach conversations. The approaches that worked best for me were

1) asking their advice. For example "dh and i are putting together our will and filling out our associated paperwork for medical poa etc. and wondered how you made x decision?" That stimulated some discussions.

2) divide and conquer ..."dad, I'm worried about mom, housework is getting to be too much for her," "mom, I'm sorried about dad, he needs more medical supervision." Etc. That really helped back when we first got home care in.

3) tell " a friend's dad deided to get x help and is really finding it helpful" stories and ask if theyve ever considered using x help.

Editing to add that mom and dad were waay past intoductory conversations on these topics when I used these tactics. In fact we had many of the same conversations when they were younger. They reached a point where they dug their heels in and said they were just fine and to stay out of their business. I had to use tactics to force the issues.
 
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When we all arrive at this juncture (Which we will if we're lucky) will we be any different. I hope I will be:)
As someone in the midst of this right now I hope that when it is my turn I will make things easier on my DH and my girls. I tell them if the worst happens and I get dementia like my mom that they should put me in a home (hopefully a decent one) and visit, but live their lives. In particular, I want more for my DH especially if we are young (my mom started showing symptoms in her late 50’s, she is 73 now and in the later stages). I would be okay if he found someone else to share his later years with even if I am still alive.
 
@disneyseniors I hope you know I laughed at your post not because the situation was funny, but because I could relate! I went through that whole Life Alert thing with my mother, and DH with his father. I had many phone calls with the company and discussions with my mother, ordered all the stuff, it was finally delivered, and she told me to send it back, she wasn't going to wear the thing around her neck, nor did she want to pay the $50/month! :lmao: (This was a lady who gave college age DS a roll of pennies a couple of years back so he would have some spending money! DS still keeps the roll in his memory box.) We had the option of either the bracelet, or the necklace, but the thing was that the bracelet didn't have falls detection, which was the thing she really needed, so she did agree to the necklace initially. The truth was that there was mostly someone always home with her (we have the in-law) with rare exception, but it was one of my siblings who was pushing the idea so Mom tried to go along with it. But the reality was she was never going to wear it, and I knew it. In fact one of the conversations I had with the company rep (not actually Life Alert, but similar) told me their biggest problem is that people don't wear them. I think many do it to appease their children but when they leave, they do what they want! FIL had gotten one but it was in his bedroom when he had a fall in the bathroom. Estimates were that he was on the ground for two hours, and he was lucky to live because his blood sugar was critically low. We have seen patients in the hospital who were on the floor for days. But it is hard to get them to wear the devices. We wound up putting a small bicycle bell on a lanyard and asked Mom to wear it. Still didn't, of course, until she couldn't get up by herself and had to call for help. I have talked to children who have cameras in their parent's houses. For some that might be a better option.

We went through something similar with my MIL. Since both sons were over an hour away, she agreed to get a Life Alert type monitoring system. And she did actually wear it. BUT--she complained that it would give false alarms. The company would try to contact her, then send an ambulance over when she didn't respond. She kept saying that they were trying to trick her into signing up for a more expensive service. The reality was, she was having episodes where she was falling/losing her balance, and she didn't want anyone to know. It was very frustrating--silly us, wanting to keep her safe, but she was determined to prove that she could live independently. We eventually "won", if you can call it that, but it took the fall that broke her hip to get there. There are no easy answers, for sure--the best I can offer the OP is that a lot of us have been there, and we sympathize with her plight.
 
OP here...:grouphug: Group Hug...

I can not say a big enough Thank you for all the kind words and thoughts. As well as what I consider solid advice, it really give's me some place's to start looking and options on how to approach this with my parents, the thing is I worked in Long Term care for years, and I know what's out there, I guess once your dealing with it, and it's your parents or family members. Being in the midst of all of it, your emotions start taking over... and what you know goes out the window... I appreciate you all, you helped me focus...Thank you

Over the last few days, I have took a step back to clear my head, and settle my emotions.

First off - I need to be honest with myself, on what I can do... and I need to tell them. An honest conversation with them, about what I can do, and what I am unable to do, as well the possibility of us having to move again... making the conversation about that.

Second - I called my brother, and we are going to get together after the kids go back to school ( we are both watching our grandkids this summer) I told him, that he needs to figure out just what he can do to help with them... I did tell him that he needs to be sure that he can do what he says. So that we don't have any holes... I said if you can only take them to the doctor's once a month, then say that... It's okay... or you can take them a meal once a month, then that's okay to... So we can get a true picture of what we can do, then figure out how to fill in the holes...

I am working on a shared calendar so that we can plan ahead...

I have done some research on meal on wheels, and the more I look at it the more I like it... They could afford to pay for the meals, There are so many positives... I would know that they would be getting nutritious food 5 days a week, as well someone would be going to the house to deliver the meals, so someone in the house, as well this will prompt them to stir around..

I called around for medic alert, and have found out several options, and price pointed them out... not sure that we are going to get them to go for this right now.

A guy I grew up with owns a cleaning business, and I am going to see what it would cost to have someone clean once a month... and I would make sure it was on a day I was there. He helped me with my granny's house... so I know what kind of work he does, and he is reliable and honest...

I started looking through my recipes, and started formulating some meal plans to take over there.. something that they could enjoy for a couple of days, along with like a loaf of banana bread, or blueberry muffins...or make some homemade chicken or turkey salad to go along with it for lunches...

They have soooooo much stuff, and this is one the reason my mom is refusing to leave her house because of all the stuff...So for DH and I, we decided as well I talked to DD... we are only going to do gift cards, and cash... and/or if they need something for the house, or something for their person, no more dust collectors for gifts for them going forward... and I will talk to my brother to see if they will go this route... Which will cut down on adding more stuff...

A friend works in Geriatric mental health field, and she suggested that I ask them what their plan is for this next phase of their life? how are they going to handle it once of either of one of their daily care becomes to much for the other one to safely take care of them? and if they they are split up, say one in the nursing home and one still at home, how is that going to work out? things like transportation, living expensive, and so on... She said by making it their decision, and removing yourself from the equation, sheds a different light on things... and in the end she said that no matter what you can not force them to move, or change... and that I need to come to terms with that...

Having some type of plan really helps me...

Please keep sharing your stories, and offering whatever insight that you have... it is all appreciated...
 
They have soooooo much stuff, and this is one the reason my mom is refusing to leave her house because of all the stuff...So for DH and I, we decided as well I talked to DD... we are only going to do gift cards, and cash... and/or if they need something for the house, or something for their person, no more dust collectors for gifts for them going forward... and I will talk to my brother to see if they will go this route... Which will cut down on adding more stuff...

This stood out to me. You can't let this be a reason for your parents to not move to a safer, place that accommodates their needs.

Honestly, you and your brother will ultimately end up dealing with this. So my suggestion, if you think they can afford to move to continuing care, is to tell them that you two will take care of it for them if they move. We were able to piece together the entry cost for my dad's continuing care so that we could move him in before selling the house. We waited a month or two after he moved to start clearing out - we had agreed to that when he moved in case he realized that there was stuff he still needed - but really once he was out, he didn't really look back. Honestly, there's a good chance that the stress at the thought of dealing with all the stuff, or not and leaving it behind, could be a pretty big factor in your difficulty. (A friend used the exact same tactic for her father in law, and it worked really well for them as well.) It really is a big win-win. You win because you are choosing to do it on your terms. And a win for them, because they don't have to watch the junk haulers come and, well, haul junk.

Otherwise, you seem to have a good plan. Just hold firm on your limits. And good luck.
 
Go to agingcare.com and join the forum for caregivers. It was an emotional lifesaver for me when I became my mother's caregiver. I can tell you that for every concern/question/or issue that you have, someone on there has gone through it and can provide advice or just emotional support.

https://www.agingcare.com/caregiver-forum
 
@disneyseniors I hope you know I laughed at your post not because the situation was funny, but because I could relate! I went through that whole Life Alert thing with my mother, and DH with his father. I had many phone calls with the company and discussions with my mother, ordered all the stuff, it was finally delivered, and she told me to send it back, she wasn't going to wear the thing around her neck, nor did she want to pay the $50/month! :lmao: (This was a lady who gave college age DS a roll of pennies a couple of years back so he would have some spending money! DS still keeps the roll in his memory box.) We had the option of either the bracelet, or the necklace, but the thing was that the bracelet didn't have falls detection, which was the thing she really needed, so she did agree to the necklace initially. The truth was that there was mostly someone always home with her (we have the in-law) with rare exception, but it was one of my siblings who was pushing the idea so Mom tried to go along with it. But the reality was she was never going to wear it, and I knew it. In fact one of the conversations I had with the company rep (not actually Life Alert, but similar) told me their biggest problem is that people don't wear them. I think many do it to appease their children but when they leave, they do what they want! FIL had gotten one but it was in his bedroom when he had a fall in the bathroom. Estimates were that he was on the ground for two hours, and he was lucky to live because his blood sugar was critically low. We have seen patients in the hospital who were on the floor for days. But it is hard to get them to wear the devices. We wound up putting a small bicycle bell on a lanyard and asked Mom to wear it. Still didn't, of course, until she couldn't get up by herself and had to call for help. I have talked to children who have cameras in their parent's houses. For some that might be a better option.

No problem! I knew you were laughing at the life alert situation:) It is funny, but sad that they won't listen. I guess I will have to keep checking on her alot more and reminding her. My mother is 92 y/o. The story of the roll of pennies is so funny. My Mom always gives "strange" gifts to her grandsons. You never know what you will get from her. I love her to death but it drives me crazy that she won't take this seriously. Glad you got a laugh out of it!
 
I am a retired home care physical therapist and agree with @disneyseniors. Often PT and OT can help in the home.

I did not read all of the previous responses so this may have been mentioned.

Mom's Meals may be available in your area. You can order and pay for meals and have them delivered. They are heat and eat, no prep required. And sometimes the cost can be covered by another source.
 
I just want to remind everyone that you should familiarize yourself with the Elder Abuse laws in your state.

It doesn't take much for someone inside or outside the family to file a complaint. Even if you are doing things correctly, you are put into the position to defend yourself.

The state my family lived in had a very strong statute that became a source of our conversations as they aged. Luckily for me, I was able to work with my family and they understood the position I was going to be in.

For example, my mother could have caused me a lot of trouble if she had not agreed to go to assisted living after her hospitalization, where the patient advocate told us she could no longer live alone. We were informed by this with a meeting and written discharge papers. If she had been insistent that she live alone and if I allowed it without any plans to make her safe, it would have been possible to prosecute me, in her state, for Elder Abuse. Obviously, someone would have to file a complaint, but that complaint could have come from anybody, even the man that mowed the yard, or her hairdresser, or her neighbor.

Just one more thing to add to the ever-growing lists of things to do.
 
When we all arrive at this juncture (Which we will if we're lucky) will we be any different. I hope I will be:)
I'm training my grandkids NOW and hoping it sticks with at least of couple of them. 😉🤣
 
We also made an appointment with an elder lawyer early on. We wanted to make sure we knew what was coming next, how to file for state aid when they ran out of money, etc. It was the best money we ever spent. That and, make sure any assisted living/ nursing home you ultimately use tells you how many beds they have that are both pay as you go and state subsidized. Some only have a few, others are all beds.
 
Just a note about the stuff. My parents want to save a lot of their things for their kids. China and other collectibles. Well, I don't need their silver set or their china or any of it, but I take it. I've even offered to take it. It'll sit in my basement until I'm sure they won't ask about it and then I can do what I want with it. They're happy I took it and it's not in their house anymore.

It may help if you think they are 'saving' things for you or your brother to offer to take them now (even if you don't want them), so they can start thinking about clearing things out. It might get them moving.
 
This stood out to me. You can't let this be a reason for your parents to not move to a safer, place that accommodates their needs.

Honestly, you and your brother will ultimately end up dealing with this. So my suggestion, if you think they can afford to move to continuing care, is to tell them that you two will take care of it for them if they move. We were able to piece together the entry cost for my dad's continuing care so that we could move him in before selling the house. We waited a month or two after he moved to start clearing out - we had agreed to that when he moved in case he realized that there was stuff he still needed - but really once he was out, he didn't really look back. Honestly, there's a good chance that the stress at the thought of dealing with all the stuff, or not and leaving it behind, could be a pretty big factor in your difficulty. (A friend used the exact same tactic for her father in law, and it worked really well for them as well.) It really is a big win-win. You win because you are choosing to do it on your terms. And a win for them, because they don't have to watch the junk haulers come and, well, haul junk.

Otherwise, you seem to have a good plan. Just hold firm on your limits. And good luck.



I totally agree with you, on the stuff in the house... When my Granny went to the nursing home, and she passed on about 5 months after she was there she was 97 just shy of 98. It took us a year to go through the house. She lived through the depression. So she saved absolutely everything... We would have to go through every piece of paper, card, envelope, boxes, jars, everything .... she stuffed money everywhere, everything from 5 dollars to 100 dollar bills. We had to go through everything to sort it all out - which family member it should go back to, things like pictures or gifts that we had given them over the years, as well things that we wanted, we donated to the church and church sewing circle that my granny had been a member of for years. As well as to habitat for humanity, domestic violence shelter, homeless shelter, Good Will, and Salvation Army... There was just so much stuff...

During this time, We ( DH and I) were in the middle of being transferred back to Florida as well our DD was pregnant, and they were moving back with us after the baby was born... So I was moving my house, looking for housing for us and my DD and SIL, and little grandson, as well as trying to help my mom, with my granny's house... so I was not there all the time. My mom started back pedaling on things that I thought went to donation, I know they were in the donation pile, she took some of it home, really alot of it home.... now not only does she have all of her stuff, she has a great deal of stuff that was my Granny's... It's insane the amount of stuff... So I am faced with this...

I do put their safety and well being first... it's on my mind all the time... That's why I am trying to be proactive, before it gets to a point that there are not alot of options for them...
 
I am a retired home care physical therapist and agree with @disneyseniors. Often PT and OT can help in the home.

I did not read all of the previous responses so this may have been mentioned.

Mom's Meals may be available in your area. You can order and pay for meals and have them delivered. They are heat and eat, no prep required. And sometimes the cost can be covered by another source.


I haven't heard of Mom's meals, I will look into it... Thanks
 
When we all arrive at this juncture (Which we will if we're lucky) will we be any different. I hope I will be:)


DH and I are have been planning for retirement, and now we are looking at 12 to 14 years and it will be here before you know it... We are over half way through our first main 5 year plan, and it looks like we might reach the goals a little early ... and we are looking into long term care insurance, and actually looking a continuing care facilities near we want to retire, and near DD and her family... While we are a long time from needing this hopefully... Neither of us, want to or will put our DD through all this. I think by us planning now while we are in good health, it's just smart, and give us a advantage to choose for ourselves, and maintain our independence.
 
is there anyway you can move them in with you? My mom is 91 and no way could she live alone for the past 7-9 years so she is with me. I would never put her in a nursing home unless there was no possible other option.


No... my parents living with us is not a option... Physically I could not do it, and for sure mentally and emotionally, I could not do it...

I love my parents very much... as I said before my mom is very difficult, and her behavior, demands and actions are getting worse. She has always been like this, now it just getting worse... before my dad would keep her in check, and now he just doesn't have the will, or the strength to deal with her outbursts, temper-tantrums and overall shenanigan. He told me he just wanted some peace and quite, so I feel he is starting to giving up..

As well we lead a very active lifestyle, and well my DH is still working and 12 years from retirement... We love to travel, road trip, Disney, go on our boat, we are always doing something... having the kids, over watching our grandson, all kinds of activities... I want to live my life, and enjoy it, the time we have here is short, and I want to make the most of it... So one day when it's my turn, I will have plenty of memories and photos to sustain me... Knowing I lived my life to the fullest... that one reason DH and I are doing all the retirement planning that we are doing now... So that we can keep our independence and not be a burden to our DD.
 
No... my parents living with us is not a option... Physically I could not do it, and for sure mentally and emotionally, I could not do it...

I love my parents very much... as I said before my mom is very difficult, and her behavior, demands and actions are getting worse. She has always been like this, now it just getting worse... before my dad would keep her in check, and now he just doesn't have the will, or the strength to deal with her outbursts, temper-tantrums and overall shenanigan. He told me he just wanted some peace and quite, so I feel he is starting to giving up..

As well we lead a very active lifestyle, and well my DH is still working and 12 years from retirement... We love to travel, road trip, Disney, go on our boat, we are always doing something... having the kids, over watching our grandson, all kinds of activities... I want to live my life, and enjoy it, the time we have here is short, and I want to make the most of it... So one day when it's my turn, I will have plenty of memories and photos to sustain me... Knowing I lived my life to the fullest... that one reason DH and I are doing all the retirement planning that we are doing now... So that we can keep our independence and not be a burden to our DD.
We can plan but it doesn't totally relieve the need for help from loved ones. There are too many unknowns that we are unable to foresee. I never felt that our parents or my grandmother were burdens.
 
They have soooooo much stuff, and this is one the reason my mom is refusing to leave her house because of all the stuff...So for DH and I, we decided as well I talked to DD... we are only going to do gift cards, and cash... and/or if they need something for the house, or something for their person, no more dust collectors for gifts for them going forward... and I will talk to my brother to see if they will go this route... Which will cut down on adding more stuff...
After I downsized my mom from her 4 bedroom house to a two bedroom apartment in continuing care, then to assisted living, then to long term care, I did the same thing. Consumables: cookies, candy, cashews, lotions, etc. And when I sent flowers I requested disposable containers so she wouldn't save the vase it came in.

Sounds like you thought through a good plan forward. Good luck!
 

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