Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

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hi everyone - my son ari is 8 yr old and has trisomy 9 mosaic. ari was granted a wish from the make a wish foundation in south florida. we will be going to disney world on may 9th for a week and we will be staying at give kids the world. i am new to disboards and would love some help in trying to get some pointer ,advice ,hints and hidden known secrets that might help me make our trip as magical as it can be. my daughter rosie is almost 12 and is the biggest justin beiber fan around! she has been having a hard time with this whole wish thing- she even had the courage to go to ari's wish granter and ask what about my wish? my heart fell into my stomach and it ached for her. we explained it to her that this was ari's wish but it was really a wish for the whole family. if anyone has any ideas to help make this trip special for rosie too. ari also loves blues clues and hopefully his wishgranter will be able to arrange a meet and greet and ari can help blue look for clues!

:welcome: While I have only been here for about 2 weeks I have gotten tons of information by reading trip and pre trip reports. I would start one...The information for that can be found here: The Wish Trip Resource Page!

Congrats on your trip I look foward to hearing more about you and your family!!
 
hi everyone - my son ari is 8 yr old and has trisomy 9 mosaic. ari was granted a wish from the make a wish foundation in south florida. we will be going to disney world on may 9th for a week and we will be staying at give kids the world. i am new to disboards and would love some help in trying to get some pointer ,advice ,hints and hidden known secrets that might help me make our trip as magical as it can be. my daughter rosie is almost 12 and is the biggest justin beiber fan around! she has been having a hard time with this whole wish thing- she even had the courage to go to ari's wish granter and ask what about my wish? my heart fell into my stomach and it ached for her. we explained it to her that this was ari's wish but it was really a wish for the whole family. if anyone has any ideas to help make this trip special for rosie too. ari also loves blues clues and hopefully his wishgranter will be able to arrange a meet and greet and ari can help blue look for clues!
:welcome:

Make sure you check out page 1 of this thread (post#1 and post#2) There is a lot of info right here... enough to start making your head spin! :lmao:

Feel free to ask any specific questions here in this thread. There are very knowledgable people here including Disney Cast Members, GKTW volunteers, past wish families, current wish families, and other people who have VAST knowledge of Disney, Sea World, and Universal!!! :goodvibes :goodvibes
 
hi ,my son has been granted a wish from make a wish - and we are going may 9th! to disney world! we are so very excited. my son has trisomy 9 mosaic. i would love some help and advice or pointers to help make this trip even more magical for my husband and i along with my son who is 8 and daughter who is 12. we will be staying with give kids the world and would love to hear u guys:earsboy:
welcome!!!

congrats on your trip! i am sure you are excited and overwhelmed! just like everyone else said, i would read some PRT's and stuff. also, if you need any other ideas for traveling with special kids, the disAbilities thread has lots of info! if you have any specific questions, just ask...people will give as much info as they can:)
 
I have been searching through designs and cannot seem to find any Luggage tags that I can personalize...Anyone have a direct link to some? My eyes are swimming!! :surfweb:
i found some super cute ones here! gonna print some myself this weekend...they slide right into your regular luggage tag! you could get some stickers at the dollar store for the back if you want to do even more. but then if your next trip is not to disney, you may regret doing that!

http://www.themouseforless.com/downloads/trip/DisneyLuggageTags.shtml
 
I have been searching through designs and cannot seem to find any Luggage tags that I can personalize...Anyone have a direct link to some? My eyes are swimming!! :surfweb:
after looking a little more, this site has some really great inexpensive ideas. lots of things you can just print at home, including autograph books! i did order evan one from disney store, but since you have more than one kiddo, this may be the way to go...i know you can buy really cheep plastic photo albums at the dollar store or bins at target, and then slide your autographs in there. good luck! the planning does seem overwhelming, doesn't it???lol. i will take this kind of overwhelmed ;)
 
hi everyone - my son ari is 8 yr old and has trisomy 9 mosaic. ari was granted a wish from the make a wish foundation in south florida. we will be going to disney world on may 9th for a week and we will be staying at give kids the world. i am new to disboards and would love some help in trying to get some pointer ,advice ,hints and hidden known secrets that might help me make our trip as magical as it can be. my daughter rosie is almost 12 and is the biggest justin beiber fan around! she has been having a hard time with this whole wish thing- she even had the courage to go to ari's wish granter and ask what about my wish? my heart fell into my stomach and it ached for her. we explained it to her that this was ari's wish but it was really a wish for the whole family. if anyone has any ideas to help make this trip special for rosie too. ari also loves blues clues and hopefully his wishgranter will be able to arrange a meet and greet and ari can help blue look for clues!

Welcome aboard! So happy to hear that Ari is getting his wish--hope he gets to meet Blue, too! That would be pretty special for him.

I'm confident that you will find that these boards very helpful in planning your trip! Sorry to hear about Rosie feeling a little leftout. It can be hard sometimes, but from from what I've read, GKTW and all the parks make the wish trip just as special for the siblings as the wish kids. So, Rosie will be treated like a queen!

In fact, one way to make things special for her, is to make arrangements for a 'Rosie' activity at Disney. If she is into princesses or pop divas (like Hannah Montana), then you might consider booking a makeover appointment at BBB (there's also a little mani/pedi spa at GKTW) or plan a meal at one of the character dining locations (princess dinners, Wonderland tea, or Winnie the Pooh or Chef Mickey or Lilo and Stich dinners, etc.). Or if she likes pirate adventures, maybe take her for a Pirate's League makeover or on one of those little 2-hour Pirate treasure hunt cruises that are organized by the various on-site resorts?

If she is too old for these things, maybe take her for some mom/daughter alone time at the Grand Floridian for high tea. Or how about letting her Pick-a-Pearl at the Japanese pavillion in Epcot (or at Sea World or Downtown Disney)? She can choose an oyster, have them open it up and keep the cultured pearl inside or set it into some jewelery as a neat keepsake. Also, there's just shopping or the make-your-own t-shirt shop in DTD! I don't know many 12 year old girls that don't like that!

Anyways, hope you'll find the info you are looking for! We'll be following along to hear more about your story....
 
thank you so much for all the responses ! i feel like i have a whole new family! i have been going through some post and have learned so many good ideas. the exact trip is may 9th till the 16th and yes we will be staying at give kids the world. one think i am happy to hear that a learned on this forum is that make a wish has resting suites in mk and epcot- and i will take full advantage of that. ari cant talk and he uses sign language to communicate. although he can hear(moderate hearing loss) anyone make a communication book for disney or program their child dynavox? ari also uses a special needs stroller. because he his extremly active and he had surgery to repair a tethered cord and he gets tired easily. anyways we have the maclaren special needs but ari is 8 and getting bigger. any ideas on a good stroller thats not a wheelchair? does give kids the world give u a big stroller? thanx for the tips on rosie- i did some research and i think one of her fav shows of all time big time rush will be at disney when we are there so maybe we can ask ari's wish granter to help us get tickets to see them just her and i. anyways does anyone know if tom and jerry is part of universal? ari has found a new love in them along with his treasured blues clues. :grouphug:
 
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hey guys it worked i post my kiddies! rosie is almost 12 and loves to pose
ari is 8 (our wish kid) and he is more the action type!!!!! meaning u need to just catch in the act. here he is at his first soccer game with vip for special needs children
 
hey guys it worked i post my kiddies! rosie is almost 12 and loves to pose
ari is 8 (our wish kid) and he is more the action type!!!!! meaning u need to just catch in the act. here he is at his first soccer game with vip for special needs children

Very cute! That's really cool that they have a soccer team he can join! I hope you find some cool stuff to do with your daughter. That has to be tough on her.
 
Can someone explain how the Universal tickets work? I know you get tickets for 2 days. Are they "park hoppers"? If we start at IOA in the morning, can we visit Universal Studios in the evening? Or is it only good for 1 park a day?
 
Can someone explain how the Universal tickets work? I know you get tickets for 2 days. Are they "park hoppers"? If we start at IOA in the morning, can we visit Universal Studios in the evening? Or is it only good for 1 park a day?

They are park hoppers!

I think most families only do Universal for one day...unless they just happen to have a large amount of things they want to do there (Harry Potter may change this some for those families that want to experience all of the Harry Potter attractions).
 
hi ,my son has been granted a wish from make a wish - and we are going may 9th! to disney world! we are so very excited. my son has trisomy 9 mosaic. i would love some help and advice or pointers to help make this trip even more magical for my husband and i along with my son who is 8 and daughter who is 12. we will be staying with give kids the world and would love to hear u guys:earsboy:

hi everyone - my son ari is 8 yr old and has trisomy 9 mosaic. ari was granted a wish from the make a wish foundation in south florida. we will be going to disney world on may 9th for a week and we will be staying at give kids the world. i am new to disboards and would love some help in trying to get some pointer ,advice ,hints and hidden known secrets that might help me make our trip as magical as it can be. my daughter rosie is almost 12 and is the biggest justin beiber fan around! she has been having a hard time with this whole wish thing- she even had the courage to go to ari's wish granter and ask what about my wish? my heart fell into my stomach and it ached for her. we explained it to her that this was ari's wish but it was really a wish for the whole family. if anyone has any ideas to help make this trip special for rosie too. ari also loves blues clues and hopefully his wishgranter will be able to arrange a meet and greet and ari can help blue look for clues!

:welcome:

You have found us! :)

GKTW does a great job of making the whole family feel special all week. At the beginning the wish child gets a Mickey and siblings get a Shamu - but that is all I can remember that was really all that different.

The main time that William got really jealous and upset was the wish party for Lauren. The MAW chapter brought her a lot of gifts and nothing for William - if we had realized that would happen, we probably would have gotten him something special too.

William has a lot of medical problems, too...none life threatening that we know of at this point...but he was frustrated because he has spent about as much time in the hospital and at doctors as Lauren and couldn't really understand why she got a wish and he didn't. (Nevermind that she can't stand, walk, or even sit up straight anymore - she seems "normal" to him.) So I think that made it worse for him, too. The special needs kids already get more "attention" so that is hard on everyone.

I think I might plan something special for her during the trip. William wanted to do the Pirates Dinner and that was "his" night (and we made a big deal about it being his thing)...so that was cool for him!

There are some great hints on post #2 of this thread - way back on page one and under the massive list of pre-trip and post-trip reports.

We have some hints listed there that will be helpful to you!

The only thing I would add (I think it is on there somewhere...but just to make sure you see it) is that you will want to go to Guest Services when you get to the first Disney park and request a Stroller as a Wheelchair tag. That will help him be able to stay in his stroller the whole time (he can walk if he wants, but it would be available to him) and not have to leave it outside certain buildings, etc. It basically allows handicapped seating and all of that, too.

Don't forget the button will let you in front of most character lines - just show the button to the CM when you get to a character that you want to meet and they will discreetly handle it for ya. :)
 
Was there someone who can give you the expected crowd information for your trip? (Maroo?) I've always used Tour Guide Mike in the past, but don't really want to pay $21.95 just to use the crowd calendar. Budget is a little tight, the $21 would be better spent on a new travel bag for Aleah! (She's 7 I figure she can start hauling some luggage herself! LOL)

I can give you www.touringplans.com information...Just PM me the dates you want and what your schedule is... :)

I can't give out Tour Guide Mike because I no longer have a subscription...I emailed him and he did not give me permission to give it out to you guys, so I canceled my subscription to his site. :cool2: pirate: :snooty: :upsidedow

www.touringplans.com did give me permission and has been very kind about it - so they still get my money. ;) ::yes::
 
thank you so much for all the responses ! i feel like i have a whole new family! i have been going through some post and have learned so many good ideas. the exact trip is may 9th till the 16th and yes we will be staying at give kids the world. one think i am happy to hear that a learned on this forum is that make a wish has resting suites in mk and epcot- and i will take full advantage of that. ari cant talk and he uses sign language to communicate. although he can hear(moderate hearing loss) anyone make a communication book for disney or program their child dynavox? ari also uses a special needs stroller. because he his extremly active and he had surgery to repair a tethered cord and he gets tired easily. anyways we have the maclaren special needs but ari is 8 and getting bigger. any ideas on a good stroller thats not a wheelchair? does give kids the world give u a big stroller? thanx for the tips on rosie- i did some research and i think one of her fav shows of all time big time rush will be at disney when we are there so maybe we can ask ari's wish granter to help us get tickets to see them just her and i. anyways does anyone know if tom and jerry is part of universal? ari has found a new love in them along with his treasured blues clues. :grouphug:
Hi there!

you asked about a disney page/pages for the dynavox...i am close with our dynavox rep. i just called her and she said there are none built in, but she said she would be happy to build you whatever you need =) just let me know if you are interested and i will private message you her info. she would need to know what device he has and what his settings are. but she will hook little ari up!!!!
 
I can give you www.touringplans.com information...Just PM me the dates you want and what your schedule is... :)

I can't give out Tour Guide Mike because I no longer have a subscription...I emailed him and he did not give me permission to give it out to you guys, so I canceled my subscription to his site. :cool2: pirate: :snooty: :upsidedow

www.touringplans.com did give me permission and has been very kind about it - so they still get my money. ;) ::yes::

Good information to know! I always really liked TGM but I'm kind of disappointed in that!
 
Wow more Trips! Yay! Welcome!!!!

We have another Big Give and Part 1 is posted!!!
Here is a sneek peek!


IMG_8419.jpg


:love::love::love:
 
hey guys it worked i post my kiddies! rosie is almost 12 and loves to pose
ari is 8 (our wish kid) and he is more the action type!!!!! meaning u need to just catch in the act. here he is at his first soccer game with vip for special needs children

Rosie is so beautiful--and Ari, with that mischievous grin, looks like he keeps you busy!
 
wow! so excited! of course i would love and appreciate any help i can get to help get ari's dynavox ready for his wish trip.:woohoo:
 
Good information to know! I always really liked TGM but I'm kind of disappointed in that!

well...to be fair to him...he just never responded at all. I emailed twice and never got anything back.

The touringplans.com guys - both of the guys I talked to - are awesome about it and said whatever you guys need. They even offered a free account - but I don't mind paying them at all!! I love to support people that support the wish families! (And I use it for me, too!)
 
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