When we have disabilities life gives us spoons...Everyday we start with spoons. If we shower and dress we use some of those spoons up, yet as we make a bite to eat, pick up we use some more.
The add to it a day in the park. Long walk to get in, or EVC/WC..how many spoons would each use.
Waits in lines with out use of GAC, or use the GAC and enjoy that ride how many more spoons would you use.
If you started your day with ten spoons how would you choose to use the spoons. If you have a family how much better would their day be to enjoy if you use up all the spoons by lunch and are done for the day, or do you still have half your spoons left until tonight.
If you ran out of spoons today and borrowed from tomorrow, how long would your enjoyable day be? Now you only have half the spoons you started with yesterday....
I found this explanation to my disabled but amblitory in the home daughter. I no longer allowed her to say to me, let me walk a few lines, only to have her ready to go back to the hotel, cranky, irratable, overheated, and exhausted.
The heat and humidity are issues to disabled, often unable to adjust coming from other parts of the country. Even winter going to Disney in the 88* and high humidity.
Our last trip there was no debate, the EVC was rented for the week. As 29 yr old she was independant. She could go to cafateria for a snack, to the pool and ride over to check me doing laundry. Even spend a full day at the park. BUT, she had to remember, if it is hot, if she is geeling fatigue, pace her day and request assistance from CM. It maybe down time in the aide center to cool down and drink gatoraide, It maybe Ice on ehr neck and wet towel on her head.
Just holding her arms out in front of her made them fall asleep, deep ache and send shocks from nerve compressions. She had level 7+ nerve pain everyday of her life...she used her spoons up early...But, we pay the same admission for her. Her lumbar back could end up in spasms in a near by medical center...her day was shot,
She over used her spoons. Not by intent, but perhaps the weather, perhaps the jostle on the rail road.
I use a rollator, herniations, RSD, and knee surgery's. I can sit in it, carry my cooler with water, my pillow for my arms to rest on, I do not "Look" disabled, but because of my daughters limits, I had to worry of her first.
What ended up happening, I became over heated, some rides at Universal.
I had to sit my daughter on my rollator and push her up the hills as the cast member asked her to park EVC if she could walk.
I nearly passed out from heat exhaustion doing the inclines of the Suess train ride...only to find out there was an elavator for non ablatory....Maybe she could stand, but we could not tolerate!
We did three attractions at UNiversal Island of adventure and the entire day was gone....
I found better assisatance at The reg. Universal park. I was able to take her in the speedpass lines, or handicap access lines. We did about 6-7 attractions. One she was allowed to stay on for two rides in a row...
No matter your abilities, or think you can endure....remember you still only have so many spoons, be conservative with them.
dianne
In Memory of my daughter who taught me so much that last trip Oct 07