Alexsandra
Ready for the next adventure
- Joined
- Feb 23, 2011
If you are not convinced this is your diagnosis, get a second opinion. You know your body better than any doctor. Someone above posted a link to my in-progress food report from our trip. In the first post, I go into some detail about my journey with a diagnosis. It's been a struggle for about a year now, and I STILL don't technically have a diagnosis.
My GI initially diagnosed me as having gastroparesis, a miserable condition of digestive tract paralysis, brought on by a virus (or so she surmised). I was on the gastroparesis diet with a little bit of initial relief of symptoms, but then that relief stopped.
I read your report, thanks for putting it out there. It definitely give me hope.
The wheat, soy and dairy free plus low FODMAP diet has made a world of difference for me. I am pretty much asymptomatic unless I screw up. At first, I was concerned about feeling deprived, but I feel so much better on this diet that I'm not tempted to "cheat"; I know what will happen if I do, and I'm not willing to spend two or more days with severe nausea and vomiting. I have, however, made some stupid mistakes because of assuming something was ok. My advice: ALWAYS check labels and ask about ingredients.
I just started the diet a week ago but I still feel not well. I am hoping it is because my body has not adjusted to it yet. The thing that stumps me is the horrible reflux i am experiencing. I took out all Fodmaps but I remove dairy completely too because it seemed to make it worse. Now I am wondering if it isn't something else?
It was hard to not have a Mickey bar. It was hard to not have a bite of my husband's cupcake. But I still had a great time and accepted that this is how I do Disney now. There's a lot more than food!
You might want to check into getting a grocery delivery of safe foods and snacks for you that you can take with you. We had a delivery of stuff including Enjoy Life crunchy chocolate chip cookies (all the crunchy ones except for the honey vanilla are low FODMAP; all the soft ones are high FODMAP because of the date paste) and Enjoy Life dark chocolate bars as well as some Udi's double chocolate muffins. That way, I didn't have to sit and stare at my husband as he enjoyed a treat, but I got to enjoy something as well.
THanks for the tips. I usually do get grocery but was going to skip this time since it is just me and my husband. Now with my IBS, special food delivery sounds like a good idea!
I really recommend downloading an app for your phone from Monash University in Australia. It's where the low FODMAP diet began. It's $9.99, but all the profits go toward research. It's been a huge help to me. Pretty much, you type in a food and it comes up with a red, yellow or green traffic light symbol and an explanation of which FODMAP is contained in the food.
That is exactly what I did. I researched as soon as I got diagnosed and found this app. Thank goodness! I am doing the one week challenge and I am using this as a basis for all my food decisions, if not it is just too overwhelming.
Good luck!
Thanks I appreciate your support and great tips.