we can plan another trip. I know I haven't posted much lately, but I have had so much on my plate. Today I feel much better.
My sweet DD, as you may recall, has a myriad of health problems. A year and a half ago, we were planning a trip to WDW when she collapsed. Another full faint with secondary seizure symptoms. She was put on oxygen, and the dr wouldn't allow her to fly, so we canceled that trip. Eventually, the dr said she could travel, so we booked another trip. It was a whole new ballgame, because she is now on oxygen, and although we have been to WDW many, many times, the oxygen was a new experience for us. Still, we were optimistic, until she collapsed again in March. This one was different. I thought she was dying. I'll never forget it. It was horrible. The dr told us that she had a year left. Broke our hearts. By August, the dr more or less said if we want to take her ok. She could have troubles there, she could have troubles at home. Go, make some memories. She really wants to go back to WDW. It's her happy place. So, I was hoping to plan a trip, but the oxygen is such a struggle. Until I experienced it, I just didn't realize the logistics of it. We live in Canada, so it complicates things. Air Canada charges $300 for oxygen on the plane. I will have to rent a concentrator for oxygen in the hotel room $100. Each cylinder we rent is $35. If we use 4, it's $140 a day. We were hoping to stay 3 weeks, because she sleeps all afternoon, and it takes us longer to do things. Wow! that's a lot of money!! Now the big problem! We have to be at the airport 3 hours ahead of time. We cannot take cylinders on the plane. It isn't allowed. So, we need oxygen at the airport in Toronto, and once we land. The charge for that is $150 for them to clear customs and meet us at the gate with oxygen, and it's usually just not done. The only other solution would be to get a portable oxygen concentrator (POC). It would cost another $7000 with all the extra batteries and battery chargers. It just seems to get more and more complicated.
However, yesterday I got what I believe could be wonderful news. Our oxygen provider is considering getting a (POC) and we can rent it, or they may even loan it to us. They borrowed one from another office, and tested my daughter on it, to see if it would meet her needs. It tested better on her than they expected. I know it' s too early to celebrate, but I am soooo pleased.
So, please help me plan a trip of a lifetime, and I do not use that term loosely. I know it will be her last trip, and I'm certain it will be mine. I just can't imagine WDW without her. Any ideas, or suggestions.
My sweet DD, as you may recall, has a myriad of health problems. A year and a half ago, we were planning a trip to WDW when she collapsed. Another full faint with secondary seizure symptoms. She was put on oxygen, and the dr wouldn't allow her to fly, so we canceled that trip. Eventually, the dr said she could travel, so we booked another trip. It was a whole new ballgame, because she is now on oxygen, and although we have been to WDW many, many times, the oxygen was a new experience for us. Still, we were optimistic, until she collapsed again in March. This one was different. I thought she was dying. I'll never forget it. It was horrible. The dr told us that she had a year left. Broke our hearts. By August, the dr more or less said if we want to take her ok. She could have troubles there, she could have troubles at home. Go, make some memories. She really wants to go back to WDW. It's her happy place. So, I was hoping to plan a trip, but the oxygen is such a struggle. Until I experienced it, I just didn't realize the logistics of it. We live in Canada, so it complicates things. Air Canada charges $300 for oxygen on the plane. I will have to rent a concentrator for oxygen in the hotel room $100. Each cylinder we rent is $35. If we use 4, it's $140 a day. We were hoping to stay 3 weeks, because she sleeps all afternoon, and it takes us longer to do things. Wow! that's a lot of money!! Now the big problem! We have to be at the airport 3 hours ahead of time. We cannot take cylinders on the plane. It isn't allowed. So, we need oxygen at the airport in Toronto, and once we land. The charge for that is $150 for them to clear customs and meet us at the gate with oxygen, and it's usually just not done. The only other solution would be to get a portable oxygen concentrator (POC). It would cost another $7000 with all the extra batteries and battery chargers. It just seems to get more and more complicated.
However, yesterday I got what I believe could be wonderful news. Our oxygen provider is considering getting a (POC) and we can rent it, or they may even loan it to us. They borrowed one from another office, and tested my daughter on it, to see if it would meet her needs. It tested better on her than they expected. I know it' s too early to celebrate, but I am soooo pleased.
So, please help me plan a trip of a lifetime, and I do not use that term loosely. I know it will be her last trip, and I'm certain it will be mine. I just can't imagine WDW without her. Any ideas, or suggestions.