Ellajoan
Mouseketeer
- Joined
- Aug 10, 2005
Hi again,
I will be getting a GAC for my Cognitively Impaired daughter for June (we tried last time without one--definitely want one for occasional use to prevent meltdowns this time). My question--she has a very rare chromosomal disorder that few have heard of (ring chromosome 13), and we've had people act as though we are making up her diagnosis because they've not heard of it. Most of this is because she looks "normal" until she tries to communicate or gets frustrated. She has many, many, characteristics of autism (inflexibility, inability to wait, need for routine, perseveration on things, sensory issues). I almost prefer to say she has autism to the Guest Relations folks, rather than try to explain her condition and say "autistic characteristics." The general public is much better schooled and more understanding about autism, it seems, than other disorders. Would that be easier?
Sorry so long!
I will be getting a GAC for my Cognitively Impaired daughter for June (we tried last time without one--definitely want one for occasional use to prevent meltdowns this time). My question--she has a very rare chromosomal disorder that few have heard of (ring chromosome 13), and we've had people act as though we are making up her diagnosis because they've not heard of it. Most of this is because she looks "normal" until she tries to communicate or gets frustrated. She has many, many, characteristics of autism (inflexibility, inability to wait, need for routine, perseveration on things, sensory issues). I almost prefer to say she has autism to the Guest Relations folks, rather than try to explain her condition and say "autistic characteristics." The general public is much better schooled and more understanding about autism, it seems, than other disorders. Would that be easier?
Sorry so long!