Bearshouse
Mouseketeer
- Joined
- Jul 17, 2009
Eight years ago our son was granted a wish trip to Disney. He was almost 10 and time was ticking away due to all of his disabilities. What we thought would be a once in a lifetime trip turned into an amazing love affair. You see Disney has mouse rules and those are not the HUGS rule. So for the first time in his entire life he was able to get out of his chair and have us hold him while he got to be a kid without limits.
Had it not been for this boards suggestions, links, and ideas we would never of been as prepared as we were to have not only an amazing first trip but many more.
With a heavy heart our son earned not only his wings but his legs this week. Disney will never be the same nor will our lives. While 18 years wasnt enough his life was well spent. He thumbed his nose at more then one specialist and in the end he got the last laugh. You see, he finished his bucket list one that was to never be finished. His tenacious spirit made sure of that.
So if you see a mom, dad and sister looking a bit lost over the coming years it might just be us. If you see someone smiling at your child in a chair a little more then you think necessary it might just be us. If you hear a young lady say something that makes your child feel special when others our cruel it might just be us.
Thank you for all your advice.
-Ohana means family and family means no one gets left behind or forgotten. Our family might be small and broken but good. Yes still good.
Had it not been for this boards suggestions, links, and ideas we would never of been as prepared as we were to have not only an amazing first trip but many more.
With a heavy heart our son earned not only his wings but his legs this week. Disney will never be the same nor will our lives. While 18 years wasnt enough his life was well spent. He thumbed his nose at more then one specialist and in the end he got the last laugh. You see, he finished his bucket list one that was to never be finished. His tenacious spirit made sure of that.
So if you see a mom, dad and sister looking a bit lost over the coming years it might just be us. If you see someone smiling at your child in a chair a little more then you think necessary it might just be us. If you hear a young lady say something that makes your child feel special when others our cruel it might just be us.
Thank you for all your advice.
-Ohana means family and family means no one gets left behind or forgotten. Our family might be small and broken but good. Yes still good.
. I am so sorry for your loss and grateful you have wonderful Disney memories with him.
