Support Groups

[PrincessGrace]

I posted a thread on the community board last week asking about support groups for kidney disease, and I didn't get too many replies (Dan Murphy suggested a internet search; I was very grateful for the help ). I posted it over there because it technically doesn't deal with trip planning issues at this time....but it will in the future. I was wondering if anyone here can help me? A website, boards, or anything would be appreciated. I haven't had much luck on my own.
Thanks,
~Christina

 

[SueM in MN]

We get some things that are off topic here. With disabilities, even if it's not about trip planning exactly, it may help someone with their trip.
The National Kidney Foundation has a message board, but it's not really organized into forums like the DIS Board. This website, called Kidneywise looks like it might be useful. It's sponsored by Baxter, a healthcare company that makes a lot of supplies used in dialysis. Another reputable source of information is www.medhelp.org

And, if you are looking for support groups in your area, here's a link to the website of the Illinois chapter of the National Kidney Foundation.
You might also contact a local dialysis center to see whether they are aware of any support groups in your area. Also, in most parts of the US, there is a United Way supported information service where you can ask questions like this. It's often called First Call for Help.

 

[Michigan]

Your Nephrologist should be able to tell you if there is a local group you could contact. My youngest DD had a right nephrectomy when she was 3.