blmalloy
Earning My Ears
- Joined
- Jun 4, 2013
London Grace is a happy, cheerful 6 year old who loves all things Disney. She was lucky to be born into a family with parents who are happily obsessed with visiting the park (our home park is Disneyland…we are in AZ so its an easy trip over), so she has grown up visiting the magical place at least once a year.
About 3 years ago, she stopped growing. At her six year well check, her doctors referred her to endocrinology. She was diagnosed with Growth Hormone Deficiency, and we were excited to finally have an answer for her stunted growth and to start therapy for her. She had to have an MRI to make sure there wasn't anything in her brain that would be causing her pituitary to not function correctly.
They found a tumor on May 14th.
She had a full craniotomy on June 17th, but they were unable to remove all of the tumor. There were several side effects from the surgery, and we still have a long road ahead since, well…she still has a brain tumor. The future is a bit unknown, but her prognosis is stable for now.
Her wish came at the perfect time. We just have one MRI scan to get through in September, and if her tumor is still stable, we can travel according to plan on November 5th.
Her wish is to go to Walt Disney World, but more specifically to "dress up like a princess and go inside Cinderella's Castle". We shall see.
(Also, I'm new to all of this, so I'm still working with my signature and whatnot, lol!)
About 3 years ago, she stopped growing. At her six year well check, her doctors referred her to endocrinology. She was diagnosed with Growth Hormone Deficiency, and we were excited to finally have an answer for her stunted growth and to start therapy for her. She had to have an MRI to make sure there wasn't anything in her brain that would be causing her pituitary to not function correctly.
They found a tumor on May 14th.
She had a full craniotomy on June 17th, but they were unable to remove all of the tumor. There were several side effects from the surgery, and we still have a long road ahead since, well…she still has a brain tumor. The future is a bit unknown, but her prognosis is stable for now.
Her wish came at the perfect time. We just have one MRI scan to get through in September, and if her tumor is still stable, we can travel according to plan on November 5th.
Her wish is to go to Walt Disney World, but more specifically to "dress up like a princess and go inside Cinderella's Castle". We shall see.
(Also, I'm new to all of this, so I'm still working with my signature and whatnot, lol!)