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Dysgraphia and getting a diagnosis HELP (long)

buzzlady

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Apr 3, 2003
DS8 has a all signs of dysgraphia. I am not able to get an appt. with a nuerologist that participates in our insurance. There is a 1 1/2 YEAR waiting list. I did find a facility that would do an evaluation, but they don't participate in our insurance. I called the insurance co. and they couldn't find a nuerologist within 50 miles of my house. I have been working with them to have the facility that I found approved to be treated as in network. The last person that I spoke to today never heard of dysgraphia but when she looked it up said that it's considered a learning disability. She said that the insurance doesn't cover learning disabilities. She is taking the request to someone higher. It is ME that researched this and found dysgraphia but he has not been diagnosed - that is what I'm trying to get done - so how can they say they don't pay for a learning disability when he hasn't been diagnosed. Is there anything that I should say or do to convince them that he need this evaluation? Any help would be greatly appreciated. The insurance co. is supposed to call me back on Monday and let me know what their decission is.
 
I believe (and am almost certain) that your school district is responsible for that evaluation. You MUST take it up with them. Dysgraphia is a learning disablity/language disorder and falls under the IDEA (Individuals with Disabilities Education Act) which is a federal law. Talk to your sons teacher and the principal. The school district is responsible for finding a competent person to do the evaluation in a timely manner (even if it is over the summer). Good Luck!
 
I absolutely agree that it is your school districts responsibility to help you with this. If your school has not acknowledged that there is any problem, could your pedicatrician help you to get them to start the process. My DS, who is special needs, was born in NJ and we lived there until he was 7. Our district was totally supportive and financially responsible for him from 3 years on, even though he was always in schools out of district.

Each insurance is different, but if mine were acknowledging that they can not get a neuro closer than 50 miles, then they are obligated to pay the closer doctor at in network percentages.
 
DS had an evaluation by the school in 1st grade. He was not classified but qualified for OT. I was not aware of dysgraphia at the time and apparently neither were or are they. I have a difficult time gettin the school to even provide him with the OT every year. He started OT at the very end of 1st grade and was supposed to be automatically put in for Sept. of 2nd grade. After having to go to the head of Special Svc. he was put into OT. I had to call in June of that year to ask if he would be re-evaluated for 3rd grade. The social worker thought that he would be automatically re-evaluated but the OT said that she needed written permission from the school. So that was taken care of (after a few phone calls by me). He was found elegible for 3rd grade. I waited the first 2 weeks of school and no OT. Started calling SS and no one knew why he hadn't started. Turns out no one put him through as a 504. It took until the end of Nov. to get him started. Our school district is very poorly managed in special svc. or needs.

Another question that I have is can I request an independent education evaluation this long after having the initial evaluation?
 
buzzlady said:
DS had an evaluation by the school in 1st grade. He was not classified but qualified for OT. I was not aware of dysgraphia at the time and apparently neither were or are they. I have a difficult time gettin the school to even provide him with the OT every year. He started OT at the very end of 1st grade and was supposed to be automatically put in for Sept. of 2nd grade. After having to go to the head of Special Svc. he was put into OT. I had to call in June of that year to ask if he would be re-evaluated for 3rd grade. The social worker thought that he would be automatically re-evaluated but the OT said that she needed written permission from the school. So that was taken care of (after a few phone calls by me). He was found elegible for 3rd grade. I waited the first 2 weeks of school and no OT. Started calling SS and no one knew why he hadn't started. Turns out no one put him through as a 504. It took until the end of Nov. to get him started. Our school district is very poorly managed in special svc. or needs.

Another question that I have is can I request an independent education evaluation this long after having the initial evaluation?


Every year your child must be re-evaluated AUTOMATICALLY for the following year. At regular intervals you and a "team" need to sit down and discuss your son's progress. An IEP (individual education plan) should have been set up originally. This is federally mandated. If the school can not provide necessary services (and an appropriate evaluation) then they are in violation of state and federal laws. Use the law on your side to bully them into doing what needs to be done. Unfortunately some school districts are better than others when it comes to special services but until the age of 21 all special services and educational evaluations need to go through them.
 
Forevryoung said:
Every year your child must be re-evaluated AUTOMATICALLY for the following year. At regular intervals you and a "team" need to sit down and discuss your son's progress. An IEP (individual education plan) should have been set up originally. This is federally mandated. If the school can not provide necessary services (and an appropriate evaluation) then they are in violation of state and federal laws. Use the law on your side to bully them into doing what needs to be done. Unfortunately some school districts are better than others when it comes to special services but until the age of 21 all special services and educational evaluations need to go through them.

Foreveryoung,

My son is on an IEP for a few things, one being dysgraphia, my question is; does a 504 get an automatic yearly review? It sounds like her son has a 504, not an IEP. :confused3 I don't think my son could have an IEP for just dysgraphia here, he was given an IEP for ADHD and gifted LD.
 
buzzlady said:
DS8 has a all signs of dysgraphia. I am not able to get an appt. with a nuerologist that participates in our insurance. There is a 1 1/2 YEAR waiting list. I did find a facility that would do an evaluation, but they don't participate in our insurance. I called the insurance co. and they couldn't find a nuerologist within 50 miles of my house. I have been working with them to have the facility that I found approved to be treated as in network. The last person that I spoke to today never heard of dysgraphia but when she looked it up said that it's considered a learning disability. She said that the insurance doesn't cover learning disabilities. She is taking the request to someone higher. It is ME that researched this and found dysgraphia but he has not been diagnosed - that is what I'm trying to get done - so how can they say they don't pay for a learning disability when he hasn't been diagnosed. Is there anything that I should say or do to convince them that he need this evaluation? Any help would be greatly appreciated. The insurance co. is supposed to call me back on Monday and let me know what their decission is.

Hi, I am dysgraphic also dyspraxic but that is part of my Autism. I went to a special school NJ only for autistic kids and I have special help for that. I do use typing when I can since my handwriting is not ledgible unless I write VERY VERY VERY slowly. Unless the dysgraphia is part of something bigger like a delay or autism or whatever the person to diagnose it would be a neuropsychologist specialising in learning disabilites.

I did spend two years in a normal school with support staff and though it did not work out for me. I was given LOTS of extra time for anything handwritten and exempted from it completely and allowed to use an AlphaSmart that the school provided. They have a website www.alphasmart.com you maywant to check out. I think most schools have these for students with learning differences anyway.

Hope that helps.
 


Another option is what we chose for my son, Oral Dictate. Any assignements that my son is not comfortable writing he orally dictates to his teacher. For note taking a fellow classmate takes notes and my son gets a copy...either carbon or xerox. He orally dictates all of his anwers for the state testing (FCAT). This works great for him!
 
Forevryoung said:
Every year your child must be re-evaluated AUTOMATICALLY for the following year. At regular intervals you and a "team" need to sit down and discuss your son's progress. An IEP (individual education plan) should have been set up originally. This is federally mandated. If the school can not provide necessary services (and an appropriate evaluation) then they are in violation of state and federal laws. Use the law on your side to bully them into doing what needs to be done. Unfortunately some school districts are better than others when it comes to special services but until the age of 21 all special services and educational evaluations need to go through them.


An IEP was not set up for him because he wasn't classified. I am going to request a new evaluation, although I would prefer and independent evaluation. He does receive OT 1x a week/30 mins. Shouldn't someone (other than me) be aware of dysgraphia? I am at such a loss with this school system. :confused3
 
I also identified my son's dysgraphia and had it confirmed with private testing. He is lucky that he has other disabilities and qualified for an IEP.
 
While in NJ I never had any problems getting my district to do all and any testing necessary so I can't answer at that end. I am not familiar with the 504 but I know as we were leaving NJ (15 yrs ago) there was great change going on to reduce the ease with which special services were obtained.

Now you have a tremendous amount of rights if your child has been referred for special education and maybe the reason they are not classifying or acknowledging your thoughts on his possible diagnosis is that they don't want to give you an IEP or your rights under the law. What is their explanation for the types of things you are seeing ? I am not familiar with dysgraphia, but you all are describing it as a learning disability, so I am assuming it is impacting his learning/school work. Would that not qualify him for further testing, especially since they are already providing special services and have acknowledged that need ? I'm just thinking out loud.....

Now in GA, I was very displeased with the district's in house pysch testing and when it came up for the third one I insisted it be done independently and they were to pay for it. They had no choice, the law was on my side. More recently due to new issues they wanted a neurological exam and a psycho/neuro - both of these I could pick an independent and they had to pay for it, although they had a preferred list they wanted me to use. We only did one exam, and it went through our insurance no problem (I didn't want them to have any input as to doctor). That doctor (and one of his other doctors) totally dismissed the request for neuro-pysch. My point is that many times your doctor is a great source to point you in the correct direction because too often the school districts, even mine which is big and with many resources, just doesn't understand every situation, symptom and possible diagnosis a child could have. Unfortunately sometimes we have to do lots of the leg work. Wishing you lots of luck !
 
I was curious about what it meant to have dysgraphia so I googled ;) and you have probably already been on this site http://www.dyscalculia.org/Edu563.html but what I found interesting is that it clearly states that it qualifies under federal law for services...... I hope you can get the diagnosis done and the school will then be obligated to provide him with all the necessary therapy....
 
lewdyan1 said:
I also identified my son's dysgraphia and had it confirmed with private testing. He is lucky that he has other disabilities and qualified for an IEP.

Did you go to a neurologist for the testing or was someone else able to do it. I can't get an appt. with a neurologist in my area. They have a 1 1/2yr waiting list. And now I have issues with the insurance company because it's considered a learning disability.
 
I first went to a neuro, but wasn't comfortable with him doing the testing. I ended up hiring a school psychologist who tests privately, it wasn't cheap, but worth every cent. She was also able to give us accommodation suggestions.
Many of the psychologist do private testing here, you just can't hire the one assigned to your school. Make sure whoever you use is accepted by your school system. Often times private testers are not on an approved list.
 
lewdyan1 said:
I first went to a neuro, but wasn't comfortable with him doing the testing. I ended up hiring a school psychologist who tests privately, it wasn't cheap, but worth every cent. She was also able to give us accommodation suggestions.
Many of the psychologist do private testing here, you just can't hire the one assigned to your school. Make sure whoever you use is accepted by your school system. Often times private testers are not on an approved list.


Thank you. I have found a place that is part of a local hospital here but they aren't in our insurance network (not that they are willing to pay anyway). I was told it will cost $1,600!! At this point, I'm willing to pay out of our own pocket, but if I can get the insurance to help that's even better.
 
just for a comparison, I paid $800.00. This was a complete psych/educational testing. I am in Miami, Fl.
 
lewdyan1 said:
Foreveryoung,

My son is on an IEP for a few things, one being dysgraphia, my question is; does a 504 get an automatic yearly review? It sounds like her son has a 504, not an IEP. :confused3 I don't think my son could have an IEP for just dysgraphia here, he was given an IEP for ADHD and gifted LD.

But if Dysgraphia is considered a LD (or if hes receiving OT) wouldnt that qualify for an IEP? I dont understand sorry :blush:
 
Forevryoung said:
But if Dysgraphia is considered a LD (or if hes receiving OT) wouldnt that qualify for an IEP? I dont understand sorry :blush:

I can't answer for her, but from the posts, it sounds like he hasn't been diagnosed, therefore can't get an IEP. A 504 gives limited services, but not as an IEP. I believe 504's need to be reissued each year and it is not a given that services will be granted. I originally wanted a 504, so my son wouldn't have to be labelled, but everyone said, if you qualify for and IEP, that is the way to go.
 
As the the question of whether dysgraphia would qualify a student to recevie special education services as as student with a learning disability, it depends on the state's regulations/definition of a learning disability. The state where I work (as a school psychologist) uses a discrepancy formula in determining LD (significant difference between IQ and achievement) and just because someone has a medical (as per DSM-IV) diagnosis of dysgraphia (or dyslexia or dyscalcula for that matter) it does not necessarily mean that they would present with a severe enought dyscrepancy to qualify under LD. However, the same student would qualify for a 504 plan based on the diagnosis.

I would strongly encourage you to work together with the school district, not only in possibly pursuing the evaluation through them, but also to make sure that the person you have discussed working with is someone who understands state regulations in regard to eiligibility for special education services. Way too often do I get reports across my desk from a parent who has taken things into their own hands (more power to you to be an advocate for your child) and gotten the outside evaluation, only to read through the report to see that it is incomplete in regard to the testing that is needed for eligibilty in the state's system, or to have parents expecting that the school district will follow the recommendations to the letter from the report but then having to explain to them that the evaluation they paid thousands of dollars for either incomplete or not aligned with what is used to special education eligibility.


I recently had a parent request an evaluation for her son to determine whether he presented with dysgraphia. This student was already receiving services as a student with a learning disability in all three main academic areas. What I found in this case was that despite the fact that the interventions he was receiving were appropriate (and effective), which the parent agreed, she was very caught up in getting the "diagnosis" or label of dyscalcula. As a school psychologist, I am limited to what I can "diagnose". Just as I can say that a student presents with behavioral symptoms that are consistent with those observed in students who have an ADHD diagnosis, I cannot medically diagnose ADHD. The same goes for dysgraphia, which is a medical term for a type of writing disorder. Unless it is a school psychologist who is a licensed clinical (MD) psychologist by the state, the psychologist should not be diagnosing a student as having dysgraphia and when that person is working as a representative of the school district, they still shouldn't be making medical diagnoses.. The school psychologist's role is to gather information, along with other members of the multisiplinary team to determine eligibility to receive special education services under that state's regulations, not to make medical diagnoses such as dyscalcula/dyslexia/dysgraphia. I guess the reason I bring this up is twofold: If you are expecting the school district to diagnose dysgraphia, they may not be able to do so, but moreover, what is more important, despite whatever classification or label is being used to fit eligibilty requirements to have your child access services, are the interventions and assistance are what is going to affect your child, not the label itself.

Sorry to ramble. I hop ethis was helpful and please feel free to PM me if you have any other thoughts or questions.
 

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