Dis Breast Cancer Survivors Part IV - GAGWTA

Does anyone have any experience using vit. E and primrose oil to help with pain management? Mine is residual pain after a fairly minor (but deep) breast surgery.

I just started taking them yesterday. I'm hopeful. I'd rather take those than to continue to take Advil and Tylenol.

Anyway, I'll check back later.
Hi! I have chronic pain in my breast also left over from surgery and radiation. I have a seroma in there which started out as a hematoma that never healed cause I had to jump right into chemo. Anyway, it's fairly mild and mainly bothers me during sleep when I lay on my stomach. Laying on a pillow helps. I don't take anything for it. (But I take motrin for other pains I have here and there.) I have never been a bug fan of Vit E because it is fat-soluble and can build up in your body and you wouldn't know it. Chances are good you get enough if your diet is good. I would have no qualms about trying primrose oil but I don't know that it would help much if the pain is deep inside. When and how does the pain bother you?
 
Hi! I have chronic pain in my breast also left over from surgery and radiation. I have a seroma in there which started out as a hematoma that never healed cause I had to jump right into chemo. Anyway, it's fairly mild and mainly bothers me during sleep when I lay on my stomach. Laying on a pillow helps. I don't take anything for it. (But I take motrin for other pains I have here and there.) I have never been a bug fan of Vit E because it is fat-soluble and can build up in your body and you wouldn't know it. Chances are good you get enough if your diet is good. I would have no qualms about trying primrose oil but I don't know that it would help much if the pain is deep inside. When and how does the pain bother you?

Thanks for the info.. Maybe I can take the vit. E and stagger it. It was recommended by my surgeon. I want to be compliant but conservative too.
 
Good afternoon sistas

PatsMom and Peg - Hope you are both resting and healing

Laurie - have you decided where you are staying in NYC?

We have heat again, yeah! I was chattering so bad dh said my L jaw was swollen. It felt like it too. My body does not do well in the cold. We needed 2 parts and the whole thing costed over 1100! Yikes. But this thing is like 20 years old so I guess its expected. At least this time we actually had electricity and the tv and I could use the electric stove etc and make tea, not like during the hurricane.

Today I am going to the endo so we will see what she says.

Dh is off to Calif and Seattle

Please pray for a little girl I know. She is 13 and is having surgery tomm for a brain tumor. I actually taught her in bible school once and know her grandma really well. They dont know whether the tumor is cancerous or not right now but its in a really tricky spot to get at they say near the optic nerve and someplace else. She is so young. My heart goes out to her and the family.

GAGWTA
 
Peg, I have read on breast cancer.org that there are some ways to alleviate the chemo side effects. Didn't have chemo, but certainly researched it just in case. It does seem to help for some people to fast or at least cut gluten and sugar during chemo. I know they have snacks there, so it seems backwards, but it does help some.
 
Patsmom,

Just had to reach out to my fellow NH resident to say how sorry I am that you are going though this. I hope that you find an oncologist that you like. It must be tough to be changing oncologists now.

I know you are too far away, but figured that I would throw this out. I have ovarian and uterine cancer and got my chemo at NH Oncology in Hooksett. I REALLY, REALLY like the doctors that I have met there. I have two oncologists, one is out of the Lahey Clinic in Burlington Ma. And I have Dr. Weckstein in Hooksett.

Sending good thoughts your way:hug:

I almost went to Hooksett just because Dr. Sims is in the practice there. He is the oncologist I had in Exeter! But the distance was just too much to deal with. I am seeing my new doctor in Dover on Weds morning and hopefully will be able to get going on chemo quickly. My incision still looks messy but is basically closed except for two small spots.

Peg, I am sorry to hear that you will need both chemo and radiation. Will they do the radiation first and then move on to chemo? Are they as insistent that the surgical wounds heal for radiation as they are for chemo?

No question that cancer is some scary stuff. And sometimes I just get so discouraged. But then I connect with some of the great folks who are supporing me (like all of you ladies!) and figure that I just need to keep plugging along. And kick this thing in the butt!
 
I saw the oncologist today. He believes that it is my original cancer that has come back. Hard to believe, but it was dormant for all those years.

I will start treatment in a couple of weeks. I still have to heal a bit more from my surgery. I get the stitches and staples out tomorrow! Yeah!

They will put in a port on February 8. I will have chemo followed by radiation. The chemo will be in cycles of every three weeks. Once I finish the chemo, they will do radiation every day for about six weeks. He said I should be totally done in about eight months.

I feel better about things since I spoke with the oncologist. He told me that he is pretty confident that I can beat this. I'm certainly not looking forward to it, but can handle it as long as I know what to expect.

I am scheduled for a PET scan and an MRI later this week. I have to get my staples out before the tests. As long as there are no big surprises, we have a plan in place.

I asked him if the silicone could have been the trigger for this round of cancer. He told me that it could not. In fact, he said that the rupture of my implant may have saved my life. If it had not ruptured, I might not have found the cancer until it was too far gone.

So, onward and upward! I'm setting my sights on having the most amazing holiday season this year. I love the holidays and this gives me something to look forward to. My treatment will be over by then and I intend to celebrate!
 
Peg, glad you are feeling better about things now that you have a plan in place! Waiting and wondering is sooo hard. Chemo is so different for everybody....I've gone through it twice, first time was an every other week schedule - just about the time I'd start feeling better,it was time again. Hopefully every three weeks will give you an extra week of good days! Second time I was on a three weeks on, one week off schedule. That was very difficult. I also had radiation the first time around. If I can be of any help, just let me know.

PatsMom, how are you doing?

LMP, glad your heat is fixed! But ouch on the repair bill! How was the appt with the endo today?

We are having weather here that is beyond crazy! Yesterday we had an ice storm. Tomorrow they are forecasting temps in the HIGH 60s. And by Wednesday night, we are supposed to drop to zero. :confused3

I see my oncologist tomorrow and will find out if the CT is showing any change. In September he wanted me to start chemo again, but I really didn't want too (had a Disney trip coming up!). So he agreed, and decided that since my tumor markers weren't too bad, we would let it go for two more months. November showed no change, so another two month reprieve, which was wonderful that I got to really enjoy Christmas.....I probably don't dare even hope that I'll get another pass.

Anybody having any big Super Bowl parties? Nothing here, we just aren't into football at all. But I do like to see what new commercials they come up with.

GAGWTA :goodvibes
 
Hi, again, everyone, and thanks for the warm welcomes. I've still been remiss in reading up about everyone but will try to do so and learn who everyone is.

I did manage to finish the marathon on the 13th. Yay! It wasn't necessarily pretty, but I did pull it off and have a good time and that was my goal. Took me and DH 7 hours and 8 minutes, but I was so happy to get the medal. We also took advantage of the trip to celebrate our anniversary with a dinner at Victoria and Albert's and that was just incredible. YUM!! And, glad to get such a good dinner in before starting chemo.

I had my first chemo treatment on January 17th. Side effects weren't as severe as I anticipated, but they were far more persistent than I imagined. I think it was around 10 days before the nausea really subsided to the point that I wasn't bothered by it anymore. Right now I'm feeling pretty normal again until the next heavy round on the 7th. I'm assuming that I can expect each round to be a bit worse and recovery to take a bit longer as the cummulative effect kicks in. I'm just trying to keep my sights set on May 2nd when I'll take my last of the heavy stuff. I've taken to thinking about it in terms of running a marathon. I'm on about mile 6 right now. :)

Thanks again for the warm welcome. It's certainly encouraging to hear from some of you who were in a similar place sometime ago and are doing well.

I forgot to mention one other thing. When I was running the race, I had on a pink sports bra under a white tank top. As the race went on and I got sweaty and poured water on myself (it was really hot), my bra bleed out pink all over my shirt. It looked like I was sweating pink. Seemed somehow appropriate. LOL
 
Zelly - congrats on the marathon. I smiled reading about your pink story.

Cheryl - how did your onc. visit go? Thinking of you.

PasMom and Peg - hope you are both healing.

Pats Mom - thought of you too because dh told me he has to go to china again in May, but this time its for a conference in Shanghai and not to work in Beijing.

Linda - my ds passed his dosage and calc tests and iv piggyback stuff. You cant start ivs here in NY for student nurses so they have to do it on the dummy.
So off to the operating room for him next week. He is excited!

Sha - check in, we miss you girl

Well my endo visit went very well. Ds21 went with me for a learning experience. He even said how nice my dr is! I still need to get the reclast infusion and sono. My market nuibers are great she said.

Oh and tues. was also my 4 cancerversary, so here is some :cake:for everyone. God is good and I am blessed.

Dh is now in seattle.

Remember I asked you to pray for C. the sweet teen girl who had a brain tumor that I taught before. Well they could only get half the tumor out and they are awaiting the biopsy results. She is getting 2 shunts put in for drainage right now. My heart breaks for all she is going though.

GAGWTA. Blessings to you all.
 
Hello there ladies! I won't stop to respond to each person, but I did read back through all the posts I've missed, and I hope and pray that all of us going through treatment at this time have the strength of body and spirit to keep up the fight; those of us going for tests get good results because good things do happen sometime too!! (Cheryl) Yahoooooo for a 4 year cancerversary, every year is a blessing! We got through our grand daughters birthdays, and much much harder, the 2 year anniversary of our sons death. This one was so very much harder than the last one, and our councilor explained why but it does not make it any easier to deal with. Hubby and I are leaving saturday morning, heading off to the House of Mouse!! YAY! We were going to just do a road trip into central California and I just couldn't work up much enthusiasm. We watch the news out of Los Angeles every day and the weather is so nice there, we decided to forget about the rest of California this time and head straight to the source of my happiness! Lol!!
We will be at the park for just under 2 weeks, and it may seem like a lot, but we love all the nice places to eat, to be able to just sit on a bench in the sun, by the rivers of america in new orleans square with some yummy beignets, well I could do that for hours every day!! excited because we will be there for Mardis Gras and I am pretty sure Disneylands New Orleans Square is the closest I will get to going to the real thing!! then there is Chinese New Year, and then Valentines day!! weather is good crowds are lite, got a good deal on our hotel, I am so looking forward to this!! I will try to check in while we are gone but no promises! lol....Take care everyone, see you all in a couple of weeks :banana:
 
Hi All - Hope everybody is doing well!

I am 27 was diagnosed in Sept 2011 with thyroid cancer (surgery/radiation) and in December 2012 found a lump. After 2 wks of testing, testing, and more testing I had a lumpectomy. Saw the surgeon on a Thursday and Monday morning was in the OR. Results were DCIS.

We have been doing fertility treatments for the last 4 months and this was a concern from my doctors. Lymph nodes were negative and I'm meeting with the oncologist Monday to discuss.

It's a difficult decision and I'm wondering if the lumpectomy is enough - we've been down this road once and I refuse to jump into any treatment without consideration again. We want a family and the first time I trusted and didn't stop to consider my fertility, now that seems to be all I can think of......
 
Smiley, have a wonderful trip. Two weeks away at your favorite place sounds like just the ticket. I am sorry that the 2 year anniversary of losing your deal son was so difficult. I am glad you are still continuing with the counselor, it is so helpful to talk to someone.

Did not know they know how to celebrate Mardi Gras over there. Any excuse for a party, right?

Last night when I was walking our dogs down our street, I met a big group of paraders of a certain age (gray headed) loading up their vehicles with parade throws for a night time parade here tonight. They were already in let us say celebration mode, drinking wine it looked like out of goblets.

New Orleans has to get past the Superbowl first I goes, then on to Mardi Gras!

Cheryl, hope your CT meeting with your oncologist went well.

Peg, did you have your MRI and petscan? Hoping all the scans come out clear. I am glad you are feeling more positive but hate that you are facing the treatment you are. Hang in there.

Patsmom, think of you. Hoping your pain is under control.

LMP, happy 4th! It sounds like you are getting good reports! What did the endo say? DD22 is so busy, I have not heard from her since the weekend. Is the weather as awful there as it sounds?

DD22 got promoted last week to associate district manager. From intern to here in 6 months, not bad. She said it was bittersweet, as the position was open since someone was leaving, and it was someone she liked a lot.

I guess she is getting a dose of the real world. She said she hopes she can handle the workload.

I am just glad we will see her in 3 weeks. Now we have a true reason to celebrate.

LMP, we are staying at the Eventi in Midtown. I looked at a hotel on the upper west side but it just was too far afield. Our son is going up too, so I ended up booking 4 rooms, at a good price. At least it is all booked.

We are trying to figure out which plays to see but my brother is guiding us. February is apparently not the best time for Broadway shows, either shows closing, or show openings being delayed until later.

Sorry I have been MIA, but my mom has had a couple of issues, eye problems (extreme increase in "floaters",) which necessitated a trip to a retina specialist, and a deflating breast implant. The plastic surgeon just put in a temporary saline one back in 2008 as the plan was to go in later and swap it out for a silicone one. She was scheduled to do that one December but backed out. So now the temp one sprung a leak and suddenly deflated. Took her yesterday to have it removed, which was not a big deal since it had basically shrunk down to nothing. She declined putting in a more permanent saline one, even though it would have the opportune time.

She is just done with it, and realized she can swim just fine without a breast!

I am on course with my Ideal protein diet. I have lost more than 15 pounds and a lot of inches, especially the chest and waist.

I am trying to drop more before our NYC trip where i will go on a modified version of the diet for 5 days so that I stabilize and not gain weight but be able to eat more whole food. I will get back to the losing weight version and try to make my goal of 125 pounds. Working out at the gym and walking the dogs seem to be helping me. I feel very fortunate. I am also a bit surprised at my will power. I don't normally turn much down, but I feel better, and am learning which foods to eat together and how to space the carbs out in the future (eat for breakfast and then dinner to have 12 hour intervals between carb intake).

There is a lot about nutrition I never knew. The good thing is that even now I can have seafood (I have been eating a lot of shrimp and even had boiled crawfish!). I am just not eating them with any starches or sauces. I was able to make a mean gumbo with just okra, shrimp and fresh seasonings, no roux. It is pretty darn good, and compliant with the diet.

I can do this.

One problem I am having is a flare up of a neuroma on my right foot. Anyone here ever have it. I saw both a podiatrist and a orthopedic years ago but all they ever did was give me a cortisone shot. I wear wide toe shoes, but my right foot still gives me that constant nerve jolt. I guess i will go see about another shot but it it seems pointless.

Well, small enough thing to complain about compared to you ladies in treatment or facing more.

Have a nice weekend, ladies.
 
Hi All - Hope everybody is doing well!

I am 27 was diagnosed in Sept 2011 with thyroid cancer (surgery/radiation) and in December 2012 found a lump. After 2 wks of testing, testing, and more testing I had a lumpectomy. Saw the surgeon on a Thursday and Monday morning was in the OR. Results were DCIS.

We have been doing fertility treatments for the last 4 months and this was a concern from my doctors. Lymph nodes were negative and I'm meeting with the oncologist Monday to discuss.

It's a difficult decision and I'm wondering if the lumpectomy is enough - we've been down this road once and I refuse to jump into any treatment without consideration again. We want a family and the first time I trusted and didn't stop to consider my fertility, now that seems to be all I can think of......

Hi WDWDancer, I'm sorry to read about your news. :hug: I hope the doctors can come up with a treatment and a plan that will soon put you on the road to recovery and fertility.

I'll keep you in my thoughts and prayers.
 
Hi All - Hope everybody is doing well!

I am 27 was diagnosed in Sept 2011 with thyroid cancer (surgery/radiation) and in December 2012 found a lump. After 2 wks of testing, testing, and more testing I had a lumpectomy. Saw the surgeon on a Thursday and Monday morning was in the OR. Results were DCIS.

We have been doing fertility treatments for the last 4 months and this was a concern from my doctors. Lymph nodes were negative and I'm meeting with the oncologist Monday to discuss.

It's a difficult decision and I'm wondering if the lumpectomy is enough - we've been down this road once and I refuse to jump into any treatment without consideration again. We want a family and the first time I trusted and didn't stop to consider my fertility, now that seems to be all I can think of......
First, a :hug: and Welcome. You poor thing. I've been down the infertility road, and the BC road, but not in my 20s and not with thyroid cancer to boot.

That's a tough one. I take it you were ER/PR positive? You must be worrying how all this will affect your chances of having children. And if I'm reading your post correctly, you are considering something like bilateral mastectomies?

I think you are wise to consider and explore it. Talk to your oncologist. There is a website called facingyourrisk. Also look into the story of the girl who played the daughter on Married With Children - can't think of her name. She had a similar situation and I believe she went on to have kids. (Don't know if had infertility.)

Glad you found us and hope you stick around. :flower3:
 
Zelly, congratulations on the marathon! I hope your treatments continue to go well - I love your idea of treating them like your own personal marathon.

LMP, great news on your 4th and the good endo visit!

Smiley, have a great trip.....wow, two weeks sounds awesome! Do me a favor and go to the Jazz Kitchen in DTD and have the chocolate souffle - I have been dreaming about that ever since having it last year!

WDWdancer, sorry you are facing so much at such a young age. I hope your visit to the oncologist goes well and you get the best possible treatment plan for your situation.

Laurie, congratualations to your DD - sounds like she is doing very well for herself. Your trip sounds great, I'm sure it will be wonderful to see her. Congratulations on your diet success - sounds like you are doing great!

My oncologist visit was a bit of a mixed bag. In the good news side of things (VERY GOOD news) the CT scan is not showing any increase or change in the stomach mets. On the not so great side, my tumor markers have increased quite a bit. But since that is my only "symptom" I'm going to remain in the watch and wait mode. So, yay for no chemo right now! Trying not to think about how this is exactly the way it went when I was first diagnosed with the mets, and will just focus on enjoying the next two months before I have another CT scan, and probably a PET scan too.

GAGWTA!
 
Wdwdancer, with DCIS sometimes mastectomy is necessary. It depends on how widespread the DCIS is. Both my mom and myself ended up with the widespread version, so the lumpectomy did not cut it. My mom's tumor extended beyond the edges of the surgical biopsy, so they did an MRI which indicated that a mastectomy was required. My case was a little different since I had multi focal DCIS, right under the nipple and then in the upper outer quadrant of my left breast. There would not have been much of a breast left after a lumpectomy anyway. Also, DCIS tends to snake around in the ductal system and it can be difficult for the surgeon to remove it all. At least this was the story back in 2004 when I researched and went through it all. Perhaps there are better ways now for the surgeons to know the extent of DCIS.

I am a little surprised though that you found a lump in your breast. I thought DCIS was usually found when the radiologist finds micro calcifications on mammograms. Again, maybe I am out of the loop these days.

I have wondered about a connection between thyroid disease and breast cancer. It worries me as I have had thyroid nodules for almost 22 years. We watch them, and they did seem to shrink some once I went on Synthroid for hypothyroidism in 2004. It just seemed like a coincidence to me that I was diagnosed with breast cancer and hypothyroidism in the same year.


As Linda said above, you are going through a lot for someone of your tender age. I hope you get some answers on Monday. Are they discussing genetic testing with you?
 
Cheryl, glad got another reprieve on treatment. It must be hard though being on the continual merry go round.
 
Thanks everybody! For some reason I keep thinking it should be easier to wrap my head around this the second time...it never is.

My surgeon explained it that this is a collection of cells that started mutating but it has not progressed to cancer rather pre-cancerous cells that if left will turn.

I was on my 3 cycle of fertility medications when I noticed my breast just felt weird one morning. I debated because I couldn't decide if I felt something or not - I finally called my ob. She sent me for a flurry of testing which didn't show anything conclusive except I have extremely dense breast (it was a sea of white matter). I was sent for a molecular breast imaging test which showed uptake only in the right breast.

I have no family history of breast cancer or any cancer so I do tend to think there must be some link - I have spoken to a others who have had breast/thyroid. Whether its environmental or hormonal I don't know.

I'm hoping to have a clearer plan after Monday and then next Saturday my husband and I leave for our belated honeymoon (yea for making it through the first year of cancer survivorship) trip. When we come home we have a meeting with my ob and the reproductive endocrinologist; it was all scheduled before knowing. We've talked about canceling but right now I just can't make that decision.

Thank you for all the support - you ladies are truly an inspiration
 
Wdwdancer, I think it is great than you are paying attention to your body such that you realized that something was up with your breast. It is much easier to deal with DCIS early on.

Another thing I wanted to say is that each case is vastly different, so it is not really helpful to compare your case to mine.

It sounds like you OB is a real keeper. Jumping on it the way she did was great! It sounds like you are in capable hands.

I think you are wise beyond your years not to make any decisions about canceling your meeting. Enjoy your trip. There s time.

And congrats on your recent wedding too!
 
GAGWTA, Ladies!

Seems like forever since I have checked in here, but I think of you ladies often!:goodvibes I just realized this is my mom's 5 year "cancerversary". Diagnosed 5 years ago exactly. She is turning 65 this month. She will be flying down to see DS perform in a musical on the 15th. She hasn't flown in more than 30 years. In a lot of ways her cancer made her braver - made her want to do things and experience things. DS and I drove up to see her last summer and we had a blast. Went to dinner at a NICE place, went to a museum, went on a ghost tour. :eek: :rotfl:

Anyway, all is well and I just wanted to thank you all again for the support and kindness.

Sending hugs, good thoughts, and well wishes to all!! :)
 

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