piccolopat
DIS Veteran
- Joined
- Apr 25, 2014
Since it is a controlled substance, you might want to store it in the room safe while you are out for the day.
Your statement makes me feel better. I am a nurse, and his doctor has told us it was perfectly ok for him to be off of the medicine on weekends/holidays. She told us, it was good for him to burn his energy off. Plus, I like to see him eating like a normal kid, when he's not taking the medicine. He will not eat all day, once he takes it, and why it is important I give it to him after the breakfast reservations. I've had one of his teachers, tell me that perhaps I should give it to him on Sunday's because, kids always have a hard time going back to school on Monday. His medicine is lucky if it lasts from 8:30a-2:00p on school days. His doctor has made comments like I could give it to him twice a day, but i'm too afraid to do that, because i'm afraid he will never fall asleep if I give him another dose of it. Last year when we went, I brought the medicine and some days we gave it to him and some we didn't (I think the days we had breakfast reservations, we didn't give it to him). And the days he didn't take the medication were hard. I am surprised to read that they allow the glass bottle I guess. I actually get his medication mail ordered (which is another hassle, but cheaper). We are driving, so maybe I can keep medication in glove box if the weather is not too hot- we will be there in February. Last year I kinda hid his medicine in our room. I figured it would be pretty desperate measures for someone to be going thru our clothes to find a bottle of medicine, but I probably should do the safe, but we always have it crammed with other stuff.It depends on the medication being used to treat the ADHD. My doctor advises me to take a “vacation” from my medication a few days a week if I can so I don’t build up a tolerance and need increasingly higher doses potentially. My medication does not need to be taken regularly to reach and maintain a therapeutic dose, unlike some other medications out there. The benefits of my particular medication are evident after a single dose.
I agree with what others have said. WDW can be a lot to take in and it is better to be prepared with the medication than not have it and realize he really needs it. I’m not sure if you mentioned if you’re flying or driving, but if you’re flying, definitely have the medication in its original, labeled packaging so you don’t have TSA issues.
Your statement makes me feel better. I am a nurse, and his doctor has told us it was perfectly ok for him to be off of the medicine on weekends/holidays. She told us, it was good for him to burn his energy off. Plus, I like to see him eating like a normal kid, when he's not taking the medicine. He will not eat all day, once he takes it, and why it is important I give it to him after the breakfast reservations. I've had one of his teachers, tell me that perhaps I should give it to him on Sunday's because, kids always have a hard time going back to school on Monday. His medicine is lucky if it lasts from 8:30a-2:00p on school days. His doctor has made comments like I could give it to him twice a day, but i'm too afraid to do that, because i'm afraid he will never fall asleep if I give him another dose of it. Last year when we went, I brought the medicine and some days we gave it to him and some we didn't (I think the days we had breakfast reservations, we didn't give it to him). And the days he didn't take the medication were hard. I am surprised to read that they allow the glass bottle I guess. I actually get his medication mail ordered (which is another hassle, but cheaper). We are driving, so maybe I can keep medication in glove box if the weather is not too hot- we will be there in February. Last year I kinda hid his medicine in our room. I figured it would be pretty desperate measures for someone to be going thru our clothes to find a bottle of medicine, but I probably should do the safe, but we always have it crammed with other stuff.
He has always given us trouble falling asleep at night- prior to ever taking medications. He just fell asleep around 10:30p tonight. Once he falls asleep he usually stays asleep, but occasionally runs to our bed, but falls right back to sleep. He runs laps in our living room every night, like he's training for the Olympics. It drives me crazy, to see him running indoors in circles in such a small space. We've tried lights out, lavender oils, lavender baths, decreased/no screen time. Sometimes we have sat in his bedroom for hours and given him back rubs, and he will not fall asleep. So we've kinda given up on most of our sleep advice from doctors, and just let him run his laps and play and we do always read a book. We try to do baths early, because his bath seems to energize him and wakes him up.Yeah I had someone steal my medication off me in college (mine is a controlled substance too), so people are really crummy sometimes and I understand your fears on that one. It is definitely nice having a holiday from my meds because my brain definitely functions differently off of it, so it is a great continual check that the meds are helping (since every few years I get it in my head that I don’t need the medication and everything will be fine - and then my life goes up in flames).
Being on my medication actually helps me sleep better because it calms me down. I can actually get my brain to shut up and focus on sleep instead of 101 other things lol. You know your son best though and what he needs to thrive as himself. I hope your family has a wonderful trip and there are no issues with bringing the meds!
I had a security CM pull out his pump and tell me he knows where to go if something sent wrong with his pump when I went in I had so much extra stuff with me that day. I told him I was ready for anything ( I think that day my set came out 5 times)Just adding to the chorus: I have Type 1 Diabetes, and I've had no trouble bringing glass insulin vials, syringes, infusion sets, and testing equipment (including sharp lancets) into the parks.
I had a security CM pull out his pump and tell me he knows where to go if something sent wrong with his pump when I went in I had so much extra stuff with me that day. I told him I was ready for anything ( I think that day my set came out 5 times)
Oh no, I hope you were able to do the tour I have done it and it was really fun. Yes the time I used 5 set I sweated them all off 3 lasted a whole 2 seconds final went for the sure T and used a lot of tap to hold it in, Yes it was really cool to meet a CM with a pump ( I have met 4 the security, one at RNR one at BTMRR and a VIP tour guide) always on the lookout for a pump or tubbingThe *one* day I accidentally left my extra sets back in the hotel was, of course, the one day I sweated a set right off! Murphy's Law of Diabetes. I ended up missing the Behind the Seeds tour I'd signed up for. So cool about the pumper CM!
Your statement makes me feel better. I am a nurse, and his doctor has told us it was perfectly ok for him to be off of the medicine on weekends/holidays. She told us, it was good for him to burn his energy off. Plus, I like to see him eating like a normal kid, when he's not taking the medicine. He will not eat all day, once he takes it, and why it is important I give it to him after the breakfast reservations.
I am surprised to read that they allow the glass bottle I guess.
Our 7 year old was on Quillivant for several years and we travel frequently. Just go to your local pharmacy and ask for a small plastic medicine bottle that you can put some in to take the the park. The extra bottle our pharmacy gives us is 100mL so small, plastic and never issues with it leaking. But I still put it into a small snack size ziplock bag just incase it does leak. Hope that makes sense!His medication is called quillivant XR. It comes in a dark glass bottle, and I have to draw it up in a particular syringe. I am thinking of bringing a syringe from Walmart, that has a cap on it though. Afraid it would leak. He's only 6, and I know some people think it's too young to be on these types of medications, but they'd understand if they spent one day with him off of the medicine In the past he had texture issues, so pretty much all medications he takes is in liquid form. I once gave him a chewable allergy pill and he spit it out. So the syringe is also another dilemma. Maybe a photo of the prescription bottle would be sufficient if it was on my phone, because I don't think Disney would want a glass bottle either in the park.
We give our son Quillivant twice a day because he metabolizes it quickly as well; no issues sleeping. He gets it at 6:30am and 11:30am.Your statement makes me feel better. I am a nurse, and his doctor has told us it was perfectly ok for him to be off of the medicine on weekends/holidays. She told us, it was good for him to burn his energy off. Plus, I like to see him eating like a normal kid, when he's not taking the medicine. He will not eat all day, once he takes it, and why it is important I give it to him after the breakfast reservations. I've had one of his teachers, tell me that perhaps I should give it to him on Sunday's because, kids always have a hard time going back to school on Monday. His medicine is lucky if it lasts from 8:30a-2:00p on school days. His doctor has made comments like I could give it to him twice a day, but i'm too afraid to do that, because i'm afraid he will never fall asleep if I give him another dose of it. Last year when we went, I brought the medicine and some days we gave it to him and some we didn't (I think the days we had breakfast reservations, we didn't give it to him). And the days he didn't take the medication were hard. I am surprised to read that they allow the glass bottle I guess. I actually get his medication mail ordered (which is another hassle, but cheaper). We are driving, so maybe I can keep medication in glove box if the weather is not too hot- we will be there in February. Last year I kinda hid his medicine in our room. I figured it would be pretty desperate measures for someone to be going thru our clothes to find a bottle of medicine, but I probably should do the safe, but we always have it crammed with other stuff.
Let me clarify, you don’t need the plastic bottle for the park so you can get through security. We just find it more convenient when traveling because it is much smaller than the Quillivant bottle, weighs less and don’t worry about it breaking.Our 7 year old was on Quillivant for several years and we travel frequently. Just go to your local pharmacy and ask for a small plastic medicine bottle that you can put some in to take the the park. The extra bottle our pharmacy gives us is 100mL so small, plastic and never issues with it leaking. But I still put it into a small snack size ziplock bag just incase it does leak. Hope that makes sense!