The THYROID Thread

luvmarypoppins

<font color=darkorchid>I am debating whether to pu
Joined
Aug 23, 2003
PolyAddict - no advice. My dil has hashimoto. Wishing you all the best

Christine - the trip sounds great. Dh and I stayed there a few days one anniversary using ff miles.

Macraven - how you are feeling well

Singing mom - prayers for your dad

Well my tooth is out. Now I have a gaping hole in my gum.
 

SingingMom

DIS Veteran
Joined
Jul 4, 2001
Greetings to all - I've been MIA due to Dad's death and the dog's death, and DD's move into her new townhouse. I'm still exhausted. Miss my dad and now my sister in law's dad passed yesterday and my cousin's granddaughter had a sudden malignant brain tumor with surgery, with no hope of survival, and they will be removing her from the vent this week. 7 Years old. I just can't believe what a sad year this has been.

I have spent time in Florida on two separate long stays to organize DD and supervise her remaining punch lists. I'm so much happier in Florida - I can't wait for DH to be able to retire. He was able to come down for the long July 4th weekend and we flew home together. Now I'm trying to catch up on mail, bills, laundry, cleaning. Saw Mom today - she's hanging in there. Misses Dad terribly. They were together 58 years. When the Florida weather cools down a bit I may try to take her down to see DD's new home. She can't really manage the stairs, so DD will get us a room on property and we'll just drive over to see the house.
I also threw the idea out there today that maybe she'd like to try the cruise next season (just she & I from NYC). Guess we'll see how she feels about that much travel.

I have overdue cardiologist, eye dr, mammo, & dentist appointments, but I just don't have it in me to start that ball rolling. And, after hearing your colonoscopy stories - FORGET IT - I'm putting that one on the VERY BACK BURNER!
 

Christine

Would love to be able to sit on
Joined
Aug 31, 1999
Greetings to all - I've been MIA due to Dad's death and the dog's death, and DD's move into her new townhouse. I'm still exhausted. Miss my dad and now my sister in law's dad passed yesterday and my cousin's granddaughter had a sudden malignant brain tumor with surgery, with no hope of survival, and they will be removing her from the vent this week. 7 Years old. I just can't believe what a sad year this has been.

I have spent time in Florida on two separate long stays to organize DD and supervise her remaining punch lists. I'm so much happier in Florida - I can't wait for DH to be able to retire. He was able to come down for the long July 4th weekend and we flew home together. Now I'm trying to catch up on mail, bills, laundry, cleaning. Saw Mom today - she's hanging in there. Misses Dad terribly. They were together 58 years. When the Florida weather cools down a bit I may try to take her down to see DD's new home. She can't really manage the stairs, so DD will get us a room on property and we'll just drive over to see the house.
I also threw the idea out there today that maybe she'd like to try the cruise next season (just she & I from NYC). Guess we'll see how she feels about that much travel.

I have overdue cardiologist, eye dr, mammo, & dentist appointments, but I just don't have it in me to start that ball rolling. And, after hearing your colonoscopy stories - FORGET IT - I'm putting that one on the VERY BACK BURNER!

SingingMom, so sorry to hear about all the bad news in your life right now. Sometimes it just seems to come in droves, doesn't it. I'm sure it's awful having your dad gone and quite an adjustment for your mom. Sorry also about the dog, and hope that one was at least due to the natural course of things and not a surprise.

I hear ya on the doctor's appointments. I've been through the ringer this year and they never stop. I just finished up with my annual GYN and mammogram appointment. I have a one month break before I go to the endocrinologist. I am glad to get the colonoscopy out of the way. It's definitely best to do that one when you're life is calm!
 
  • Kennywood

    Kennywood
    Joined
    Jan 1, 2012
    When I was a teenager, I had a thyroidectomy. Only a portion of my thyroid had to be removed, and I'm fortunate enough not to have to take any medication.

    A while after my surgery, the scar on my neck was pretty noticeable. I was out shopping one day and a little boy did what little kids do; he pointed at my neck and asked, "What's wrong with your neck??". Having answered that question many, many times before, I thought I'd try a different answer. I looked at the boy and said, "When I was about your age, I talked back to my mother, and......" (Insert finger slash across the throat.) The boy's eyes got VERY big and he said, "WOW!" and ran off! I had every intention of telling him I was kidding and to truthfully answer his question, but he was gone in a flash!

    So, somewhere in the world, there is a now a man who probably still believes that, once upon a time, a "maniacal" woman slashed her son's throat for talking back to her. Lol
     

    SingingMom

    DIS Veteran
    Joined
    Jul 4, 2001
    When I was a teenager, I had a thyroidectomy. Only a portion of my thyroid had to be removed, and I'm fortunate enough not to have to take any medication.

    A while after my surgery, the scar on my neck was pretty noticeable. I was out shopping one day and a little boy did what little kids do; he pointed at my neck and asked, "What's wrong with your neck??". Having answered that question many, many times before, I thought I'd try a different answer. I looked at the boy and said, "When I was about your age, I talked back to my mother, and......" (Insert finger slash across the throat.) The boy's eyes got VERY big and he said, "WOW!" and ran off! I had every intention of telling him I was kidding and to truthfully answer his question, but he was gone in a flash!

    So, somewhere in the world, there is a now a man who probably still believes that, once upon a time, a "maniacal" woman slashed her son's throat for talking back to her. Lol
    Reminds me of a guy at a party who kept an entire group of women mesmerized with his neck scar story of stopping a would be mugger from harming someone by jumping him and getting knifed..... Ended up he fell down the stairs Christmas morning holding the cymbals Santa had given him …..
     

    MarBee

    DIS Veteran
    Joined
    Aug 4, 2015
    Hello! Was just recently diagnosed hypothyroid. Also related, my A1C level had me at borderline diabetic.
    My primary called in a prescription for synthroid and wants me to take it for three weeks and see how my levels improve. I wanted to make an appointment with an endocrinologist though just to make sure they were in agreement about a course of action.
    Do any of you have advice for which questions to ask the endo or my primary when I go to see them?
    Also, does anyone have any thyroid diet tips. Or any tips at all in general. I’m going to try to read through the last 203 pages here but thought it may be easier to have a direct reply handy for my appointment if you all didn’t mind helping me.
    Thanks in advance!
     

    luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    Singing Mom - so sorry to hear about your dad. Sending you my deepest sympathy, thoughts and prayers.
    MarBee - I don't know what a thyroid diet would be.
    it's been a quiet summer as dh has a big project. We dog sat last 2 weekends. Ds1 got a new job.
    going for my dental implant work on friday.
    hope everyone is well. Check in when you can.
     
  • squeegee

    DIS Veteran
    Joined
    Sep 8, 2011
    Haven’t checked in in a long time, much has happened, thyroid-adjacent and otherwise, but am still alive and kicking, and glad to see other familiar names as well. Trying to convince hubs we need to take a first-ever Disney cruise next summer. Mobility has become somewhat limited and I’m thinking a ship may be easier to get around than the parks...? Or am I totally off-base? ❤
     

    squeegee

    DIS Veteran
    Joined
    Sep 8, 2011
    Hello! Was just recently diagnosed hypothyroid. Also related, my A1C level had me at borderline diabetic.
    My primary called in a prescription for synthroid and wants me to take it for three weeks and see how my levels improve. I wanted to make an appointment with an endocrinologist though just to make sure they were in agreement about a course of action.
    Do any of you have advice for which questions to ask the endo or my primary when I go to see them?
    Also, does anyone have any thyroid diet tips. Or any tips at all in general. I’m going to try to read through the last 203 pages here but thought it may be easier to have a direct reply handy for my appointment if you all didn’t mind helping me.
    Thanks in advance!
    Can’t think of any thyroid-specific diet tips, beyond just trying to eat healthfully and mindfully. For the diabetic/borderline diabetic diets, limiting carbs will be the best bet, in my experience. If it’s white, it’s probably best avoided or minimized (tortillas, rice, bread, sugar...). Fruit is also very high sugar, even though it’s natural sugars. Use a food tracker (my fitness pal is good) that will allow you to track carbs, just so you can see where you stand - even if you don’t make any conscious changes, tracking is a good idea. When I had gestational diabetes, I was told to keep it under 60 net carbs/day.
     

    AllisonK

    DIS Veteran
    Joined
    Jun 30, 2007
    I haven’t checked in here in ages! I had a total thyroidectomy in March 2015 for a precancerous nodule. Since then my numbers (and my weight) have been all over the place. My endocrinologist has been of no help and I have now, thanks to my fantastic primary care doctor, fired him. I mentioned to her in June that I have just been constantly tired and run down since before my surgery. Now my endo would have brushed this off as, “You’re fine, lose some weight.” (I initially gained 20 pounds after surgery, lost 15, and gained 25 back this last year - did I attribute all of the weight gain to my thyroid? No. It was my first year of teaching and I had a torn meniscus that complete sidelined me at the gym for three months - I had surgery for that in December and have been working out regularly again, mostly classes at the small, independently owned gym I belong to with occasional cardio thrown in at a Planet Fitness).

    Anyway, my endo never once entertained the possibility of switching off the generic and onto a name brand. My primary care did. When I saw her two weeks ago for a follow up, she prescribed (and gave me a one month’s sample of) Tirosint. I started on the Tirosint last Friday (just over a week ago) and I’m feeling so much better already. I’m not nearly as tired as I’ve been for the past few years and my joints have been aching a lot less. I canceled the appointment I had last week with my endo and, unless my primary care sees the need to send me to the endo again, I will not be going back. Once I began reading about the generic Levothyroxine I was horrified as the fillers that are put in the pill. I have always been sensitive to lactose (since I was a little girl) and the generic Levothyroxine contains... lactose. The dosage also isn’t as well-regulated as the name brands are, so that is another issue as well.

    I go for my annual thyroid ultrasound and my follow up with my primary care in October, so we will see how things go then.

    On another note, I just started a new job as a special education teacher co-teaching 11th and 12th grade English. I’m a week in and I love it so far! Teaching is a career change for me and last year was my first full year in the classroom, where I taught 7th and 10th grade English. I’ve moved to a new school this year and already feel like I have so much more support as a new teacher!
     

    j2thomason

    DIS Veteran
    Joined
    Mar 14, 2013
    I haven’t checked in here in ages! I had a total thyroidectomy in March 2015 for a precancerous nodule. Since then my numbers (and my weight) have been all over the place. My endocrinologist has been of no help and I have now, thanks to my fantastic primary care doctor, fired him. I mentioned to her in June that I have just been constantly tired and run down since before my surgery. Now my endo would have brushed this off as, “You’re fine, lose some weight.” (I initially gained 20 pounds after surgery, lost 15, and gained 25 back this last year - did I attribute all of the weight gain to my thyroid? No. It was my first year of teaching and I had a torn meniscus that complete sidelined me at the gym for three months - I had surgery for that in December and have been working out regularly again, mostly classes at the small, independently owned gym I belong to with occasional cardio thrown in at a Planet Fitness).

    Anyway, my endo never once entertained the possibility of switching off the generic and onto a name brand. My primary care did. When I saw her two weeks ago for a follow up, she prescribed (and gave me a one month’s sample of) Tirosint. I started on the Tirosint last Friday (just over a week ago) and I’m feeling so much better already. I’m not nearly as tired as I’ve been for the past few years and my joints have been aching a lot less. I canceled the appointment I had last week with my endo and, unless my primary care sees the need to send me to the endo again, I will not be going back. Once I began reading about the generic Levothyroxine I was horrified as the fillers that are put in the pill. I have always been sensitive to lactose (since I was a little girl) and the generic Levothyroxine contains... lactose. The dosage also isn’t as well-regulated as the name brands are, so that is another issue as well.

    I go for my annual thyroid ultrasound and my follow up with my primary care in October, so we will see how things go then.

    On another note, I just started a new job as a special education teacher co-teaching 11th and 12th grade English. I’m a week in and I love it so far! Teaching is a career change for me and last year was my first full year in the classroom, where I taught 7th and 10th grade English. I’ve moved to a new school this year and already feel like I have so much more support as a new teacher!
    Allison,

    I'm so glad to hear that you are improving. I had the opposite experience. My primary care doctor didn't want me to see an endo and thought they could handle it, but they couldn't. I had to beg my primary care to even put me on medication last fall when my symptoms were so out of control that when every time I stood up my heart rate went through the roof. That went on for 3 months, I could even go to work. I am a retired teacher, but I still work part-time 3 days a week at my old school. I teach computer lab K-3. Thankfully, I was retired, because I wouldn't have been able to take that much time off otherwise. My primary care doctor started me off on.125 levo and now with my endo I am down to .75 and also off of the metoprolol that I had been on for palpitations. I realize all of these experiences vary from doctor to doctor. I'm just glad that I found a doctor that would listen to me and work with me. I'm glad you did as well.

    Now I am having other weird symptoms and I have no idea what is going on. When I use my "teaching voice" at school I have a sharp pain on the right side of my head resulting in a nonstop headache for about a month. I have a new primary care doctor now that they have given me 800 mg of ibuprofen, and also tramadol. Neither has helped. She even sent me for a head CT which came back negative. I also have styes on my eyes which has been happening on and off since January. I leave on a solo trip to WDW on 9/10 and am a little concerned about how I will fair. I have done several solo trips and LOVE them, but when I am having a nonstop headache, I think it may be tough.

    Allison, I hope your school year goes well. Special education is very rewarding, but can also be very difficult at times. Teach on!!
     
  • Christine

    Would love to be able to sit on
    Joined
    Aug 31, 1999
    I haven’t checked in here in ages! I had a total thyroidectomy in March 2015 for a precancerous nodule. Since then my numbers (and my weight) have been all over the place. My endocrinologist has been of no help and I have now, thanks to my fantastic primary care doctor, fired him. I mentioned to her in June that I have just been constantly tired and run down since before my surgery. Now my endo would have brushed this off as, “You’re fine, lose some weight.” (I initially gained 20 pounds after surgery, lost 15, and gained 25 back this last year - did I attribute all of the weight gain to my thyroid? No. It was my first year of teaching and I had a torn meniscus that complete sidelined me at the gym for three months - I had surgery for that in December and have been working out regularly again, mostly classes at the small, independently owned gym I belong to with occasional cardio thrown in at a Planet Fitness).

    Anyway, my endo never once entertained the possibility of switching off the generic and onto a name brand. My primary care did. When I saw her two weeks ago for a follow up, she prescribed (and gave me a one month’s sample of) Tirosint. I started on the Tirosint last Friday (just over a week ago) and I’m feeling so much better already. I’m not nearly as tired as I’ve been for the past few years and my joints have been aching a lot less. I canceled the appointment I had last week with my endo and, unless my primary care sees the need to send me to the endo again, I will not be going back. Once I began reading about the generic Levothyroxine I was horrified as the fillers that are put in the pill. I have always been sensitive to lactose (since I was a little girl) and the generic Levothyroxine contains... lactose. The dosage also isn’t as well-regulated as the name brands are, so that is another issue as well.

    I go for my annual thyroid ultrasound and my follow up with my primary care in October, so we will see how things go then.

    On another note, I just started a new job as a special education teacher co-teaching 11th and 12th grade English. I’m a week in and I love it so far! Teaching is a career change for me and last year was my first full year in the classroom, where I taught 7th and 10th grade English. I’ve moved to a new school this year and already feel like I have so much more support as a new teacher!
    Sounds like you had a really clueless endo. Most of them know, especially with thyroid cancer patients, never to use generic because you'll get a different manufacturer every time you fill and the dosages aren't as tightly controlled.

    I did try Tirosint once, but I couldn't tolerate it. It was like I got this "rush" for an hour or so every morning. I do pretty well on Levoxyl. It's a brand name priced lower than Synthroid and seems to work very well for me.
     

    luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    Allison - happy to see you posting. Glad things are going well for you and happy to hear about the teaching. Are you the poster who also has kerataconus? They are talking about some laser vitamin thing with my ds. His is slowly getting worse.

    j2thomason - sorry to hear of all your health issues. Hope you can get some answers.

    Christine - sorry you are dealing with all the house stuff. I am sure it's fru strating

    my daughter in law is in the hospital. They are checking things out.
    Friday ds3 is taking me for the sono. One test down then and 2 to go.
    we puppy sat our grand puppy Austen, the King Cavalier. He is cute but a handful about 4 1/2 months.
    Would love to go to food and wine but with dh job we don't know yet.
    Went to a bridal shower and a picnic. Where did summer go?
    Check in when you can.
     

    Christine

    Would love to be able to sit on
    Joined
    Aug 31, 1999
    Allison - happy to see you posting. Glad things are going well for you and happy to hear about the teaching. Are you the poster who also has kerataconus? They are talking about some laser vitamin thing with my ds. His is slowly getting worse.

    j2thomason - sorry to hear of all your health issues. Hope you can get some answers.

    Christine - sorry you are dealing with all the house stuff. I am sure it's fru strating

    my daughter in law is in the hospital. They are checking things out.
    Friday ds3 is taking me for the sono. One test down then and 2 to go.
    we puppy sat our grand puppy Austen, the King Cavalier. He is cute but a handful about 4 1/2 months.
    Would love to go to food and wine but with dh job we don't know yet.
    Went to a bridal shower and a picnic. Where did summer go?
    Check in when you can.
    Hi everyone.

    I've been at home for about 2 weeks now (teleworking). Took prednisone and wearing walking boot to try to get my ankle to stop hurting. It has helped but I go back into shoes this week so I am worried it will flare right up.

    Counting down the days to my Disney trip (Nov 2nd). This will be my first ever F&W. Very excited about EATING on this trip. Hope it's late enough in the season to not be plagued with storms.
     


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