PatMcDuck
DIS Veteran
- Joined
- May 12, 2000
I have no idea where to ask this question, so I am trying here. Help! If you are squeamish, bail out now!
DS is now 25. Down syndrome, Autism, not verbal except for some single words. Unfortunately, he has his BMs over night in his sleep. (he does not urinate, just poop). This makes it just about impossible for him to ever be away from either me or DH in the mornings. I do not not expect his siblings to deal with this (all adults now too). He does not have accidents during the day (except at WDW! Literally the only place he does. Which is another thread).
I need to be away with him for 4-5 days this summer. Most of the time, he will be in his all day adult program (he is bussed), and home with one of his 3 siblings or a sitter. He is generally easy to watch, but needs supervision.
So I am more or less able to get this figured out, except for the mornings. Who do I need to help me out with this? Do I need a nurse from an agency? Or more of a home health aide? And have her come in a couple of times while I'm home, to get the hang of the routine? Wake him up, clean him up, shower, dress, give breakfast, and put him on the bus at 8:30 or so. It is 7-9 am type thing, or less.
I know this sounds like a thing some of you would never do, but I am with him in the morning 365 days a year, usually. DH and I can never go away unless he is with us. This trip was planned before DH got a new job in Wash DC (we live in NJ). Don't judge me..... if I can figure this out, maybe we can go away for a weekend here and there.
Thanks for any advice.
DS is now 25. Down syndrome, Autism, not verbal except for some single words. Unfortunately, he has his BMs over night in his sleep. (he does not urinate, just poop). This makes it just about impossible for him to ever be away from either me or DH in the mornings. I do not not expect his siblings to deal with this (all adults now too). He does not have accidents during the day (except at WDW! Literally the only place he does. Which is another thread).
I need to be away with him for 4-5 days this summer. Most of the time, he will be in his all day adult program (he is bussed), and home with one of his 3 siblings or a sitter. He is generally easy to watch, but needs supervision.
So I am more or less able to get this figured out, except for the mornings. Who do I need to help me out with this? Do I need a nurse from an agency? Or more of a home health aide? And have her come in a couple of times while I'm home, to get the hang of the routine? Wake him up, clean him up, shower, dress, give breakfast, and put him on the bus at 8:30 or so. It is 7-9 am type thing, or less.
I know this sounds like a thing some of you would never do, but I am with him in the morning 365 days a year, usually. DH and I can never go away unless he is with us. This trip was planned before DH got a new job in Wash DC (we live in NJ). Don't judge me..... if I can figure this out, maybe we can go away for a weekend here and there.
Thanks for any advice.