Hello,
I have been searching the boards for information but can't seem to find exactly what I'm looking for.
We are possibly going on a Disney cruise next month thanks to the wonderful organization, Make-a-Wish. My daughter is three years old and has a rare seizure disorder that has left her severely developmentally delayed. She has hundreds of seizures everyday that are not controlled by the medication she takes, she cannot walk, talk, hold up her head, is g-tube fed, and not potty trained. I've been reading all I can about the cruise and it sounds wonderful because I know she will enjoy being around the other people and characters. She loves lights and music and being in the water. I'm just not sure how well they will be able to accomodate a kid like ours- specifically, will she be able to participate in any of the children's programming? I'm really worried about travelling with her too. Will we need to bring a car seat with us for transfers from the airport? For that matter, will we need a car seat on the airplane? She sits in one in our vehicle but we have to recline the seat back a little bit to keep her head from slumping forward- I don't know if this will work on an airplane so should we even bother bringing it with us?
Sorry this is so long but I have sooo many questions! Would love to hear from someone that's been through this if there is anyone out there!
Thanks for your help!
I have been searching the boards for information but can't seem to find exactly what I'm looking for.
We are possibly going on a Disney cruise next month thanks to the wonderful organization, Make-a-Wish. My daughter is three years old and has a rare seizure disorder that has left her severely developmentally delayed. She has hundreds of seizures everyday that are not controlled by the medication she takes, she cannot walk, talk, hold up her head, is g-tube fed, and not potty trained. I've been reading all I can about the cruise and it sounds wonderful because I know she will enjoy being around the other people and characters. She loves lights and music and being in the water. I'm just not sure how well they will be able to accomodate a kid like ours- specifically, will she be able to participate in any of the children's programming? I'm really worried about travelling with her too. Will we need to bring a car seat with us for transfers from the airport? For that matter, will we need a car seat on the airplane? She sits in one in our vehicle but we have to recline the seat back a little bit to keep her head from slumping forward- I don't know if this will work on an airplane so should we even bother bringing it with us?
Sorry this is so long but I have sooo many questions! Would love to hear from someone that's been through this if there is anyone out there!
Thanks for your help!