CRPS (RSD) awareness

JimC

DVC Co-Moderator
Moderator
Joined
Dec 12, 2002
First, a very big thank you to the DIS for permitting me to post this.

This is to raise awareness about a horrific disease called CRPS (Complex Regional Pain Syndrome) or as some know it, RSD (Reflex Sympathetic Dystrophy). “The easiest way to understand…is to think of it in terms of an injury to a nerve or soft tissue…that does not follow the normal healing path. When…present, the pain is out of all proportion to the precipitating event, and continues well after healing should have occurred. The condition becomes chronic” and disabling. There is no known cure. There are treatments to manage the pain, but it is critical to have an early and accurate diagnosis for that treatment to be most effective.

My wife, Nancy, has CRPS. Twenty years ago (1996), on her way home from opening a home care case she was hit head on. That accident crushed her right foot and was followed by a tortuously slow path to an accurate diagnosis. As a result, it eventually ended her career as a pediatric nurse.

Nancy has since become an advocate and founded a non-profit, Partners In Pain, to assist patients with this disease to obtain and pay for treatments and the associated medical travel costs. She was contacted by Charles Mattocks who wanted to get involved and give this disease a voice. The preview below introduces the film, Trial By Fire, and provides background on why and how it got made.

https://vimeo.com/ondemand/trialbyfiremovie/172480999

Thank you
 
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