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  1. 999miles

    Cruise and Theme Park Operational Updates due to Coronavirus

    That’s actually what we would do if they downgraded our tickets. Universal is having a buy two get two free days option right now.
  2. 999miles

    Cruise and Theme Park Operational Updates due to Coronavirus

    I was trying to get more information on my 13 night Fort Wilderness stay today and the cast member helping me told me that Disney will be rolling back all 10 day tickets to 7 soon. Has anyone else heard this or have more information?
  3. 999miles

    Transportation with special needs child

    hi! We have years of camping experience, years of Disney experience and will be combining them for the first time this summer at the Fort. Our youngest daughter has cerebral palsy among other health concerns and does not walk. Are we allowed to drive our car from our campsite into a park...
  4. 999miles

    Flying with nourish

    Hi! We are less then two weeks out from our trip! My two year old is medically complex (shunted hydrocephalus, spastic diplegia cp, feeding tube and so forth). We flew down last year but she was on powdered formula. Not a problem with tsa. This year she is on nourish, which is a packaged...
  5. 999miles

    Terminal Brain Cancer, WDW trip, need tips and encouragement

    It’s not the same thing but my 2 year old has shunted hydrocephalus. Shunt have the highest fail rate in the medical community so we travel with a cd of her most recent brain scans so a neuro team could quickly determine if things have changed. It makes us feel prepared if she needs to go to...
  6. 999miles

    Child with feeding tube

    My daughter is tube fed too. Is it possible to do nourish, liquid hope or real food blends while you are there? My daughter is 100% nourish and it’s so much easier to travel with because each package is shelf stable. As a side note, the staff at the medical centers in the parks are amazing...
  7. 999miles

    5yo with Cerebral Palsy

    My two year old has spastic diplegia and we work really hard to keep her cool too. We bought a fan that is usb campatiable and use the Disney World fuel rods to power it. If the fuel rod dies, you just exchange it for a fresh one in any park. We also buy the first aid cold packs for sprains...
  8. 999miles

    How to keep toddler in afo's comfortable in heat?

    Thanks! I'll ask her pt about just going without them. She isn't bearing any weight right now but we expect that she will be able to by December.
  9. 999miles

    How to keep toddler in afo's comfortable in heat?

    Wonderful suggestion! Thank you. We live up north so I just pulled out a pair of regular weight knee socks to break them in but I need to buy more. I'll look for some toddler athletic socks too!
  10. 999miles

    How to keep toddler in afo's comfortable in heat?

    Hi! Our daughter just received her first pair of afo's, which need to be worn with knee socks to keep them from pulling or pinching. She is 18 months old and has the diagnosis of cerebral palsy, shunted hydrocephalus, and has a feeding tube. anybody have any tricks to help keep her...
  11. 999miles

    The Dreaded Stroller Question

    I'd get the double. Even if he sits in it with the sunshade folded back, it keeps him corralled during super busy times like leaving the park at night. You don't have to worry about losing him in the dark. Also, he's six. There is a good chance he might just need to sit down at some point...
  12. 999miles

    Faith, hope, trust, and Pixie Dust!

    I posted on the typical board, but I think you guys will understand. Our new daughter spent 5 months in the nicu. We adopted her when she was 2.5 months into her stay. She's a 24 week micro preemie. She had some severe brain bleeds when she was born and developed hydrocephalus. She also had...
  13. 999miles

    That one moment **TISSUE ALERT**

    I know it's an old post, but I have to share. We went to Disney world as kids with our families, but the first time we went as a family was with our two older kids. Our youngest was 18 months old. She wasn't talking much yet but in the muppet show she looked up, giggled, and very clearly said...
  14. 999miles

    12 days with no suitcase- possible?

    I think you could. You could always place a garden grocer or Amazon order for toothpaste, contact solution, and other liquids and have it delivered to your resort. I have 3 kiddos, me and my husband and we will only check two bags, tops. My goal is only 1. Doing laundry once on a 10 day...
  15. 999miles

    What are the Little things you MUST do on a Disney trip?

    A picture of the whole family in front of the castle. We have one from almost every year to see the kids growing.
  16. 999miles

    Ideas on how to keep a baby cool?

    Thank you. Our daughter has a g tube and won't consume any fluids by mouth. We ordered unflavored pedialyte from garden grocer for her to put through her feeding tube as well as water. I will ask her dietitian how much we should increase her fluids.
  17. 999miles

    Ideas on how to keep a baby cool?

    Hi! We will be taking our baby to Disney world the day after her birthday in September. She is a little furnace and has some medical needs so I am looking for ways to keep her as cool as possible. I am going to buy a little stroller fan but do you have any other ideas?
  18. 999miles

    Holiday World: Santa Claus, Indiana.

    It was. We paid $125 a night off season for peeling flooring, ant infestation and cold showers.
  19. 999miles

    Holiday World: Santa Claus, Indiana.

    It's a nice park. It's super clean and well maintained. We spent a day there in May and had a great time. They are able to accommodate many dietary needs as well, which was a pleasant surprise. That being said, they don't have many rides for older kids who are still under 48 inches. My 6...
  20. 999miles

    Choosing stroller options from rentals

    We've owned a baby jogger for years. It's a regular stroller, super easy to fold, comfortable for kids, and I can push and turn our double with one hand. Your daughter will be comfortable in one. Make sure you take the rain cover kingdom strollers offers. It is wonderful for keeping the...




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