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  1. ember303

    October 9, 2017 Disney Dream Cruise

    Count the Whitaker's in! This will be our first Disney cruise! We are super excited!!!! Booked an accessible room with Veranda. Looks amazing and so much fun!
  2. ember303

    Feeding tube, other diagnosis and DAS

    My little guy is tube fed. I honestly would not feed him in a line or give his meds. I try to do that where it is quiet. If you explain to them that he needs his stroller because you are unable to carry him and he is unable to walk very long they should allow him to use his stroller. I...
  3. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    Our wish kid is 7 also : ) He has a twin sister!
  4. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    I know I also hide and eat! Although if its a salad Jackson doesnt care. Jackson says I just want something to taste :(
  5. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    i thought about doing them for that, but Jackson can not do tastes except ice and water. I try not to eat much in front of him because he misses food sooooooooooo much. Cant wait until he has no more blockages!
  6. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    Okay ladies.... Our dates are official!!!!!! We will be at GKTW October 4th-10th!!!! We are driving!!!!!!!!!! YIKES!!!! Of course make a wish would let us fly, but during the wish process Jackson wanted us to drive! Have a road trip : ) I would much rather fly, but whatever makes the boy...
  7. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    I havent really been able to find the good in Jackson not being able to eat, but all the money I will be saving on character dining!!!!!
  8. ember303

    Am I the only one who finds this awkward ?!

    My son can walk, but due to his chronic conditions long periods are out of the question. Sometimes short periods are out of the question. Sometimes he will get out of wheelchair for pictures.
  9. ember303

    Princess Katyana's Wish Trip! Pre-Trip Report

    Oh I am so sorry to hear she had surgery! As you know Jackson just had one too! Poor kiddos! Jackson is scheduled for surgery in September! Only a month before his trip! Dr said he will be okay to go so I am trusting! If not make a wish said they can reschedule it. I am so excited to hear how...
  10. ember303

    A Gloriously Gluttonous Grand Gathering -- October 2015 *Complete

    We are going in October for my sons wish trip, and you had me hooked at PARTY ROOM!!!!!!!
  11. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    Jackson is not allowed to eat anymore. So this will be our first trip without dining!
  12. ember303

    **London's Wish Trip! Pre-Trip Report**

    Jacksons dr called today and wanted to know if we needed anything put down for Jacksons wheelchair or if we where taking his. She was filling it out and faxing the travel paper today : ) So hopefully our dates will be confirmed soon! ;) LOVE LOVE LOVE that she wants to go to see Cinderella and...
  13. ember303

    **London's Wish Trip! Pre-Trip Report**

    You are so right!!!!! I will pray that her tumor is STABLE!!!!! Bless your heart momma!
  14. ember303

    terminally ill adult trip (TPN advice needed!)

    I do not have any advice other than to cherish each moment, which I know you will. I am so sorry you are going through this!
  15. ember303

    **London's Wish Trip! Pre-Trip Report**

    You are right! It is so exciting, but so sad! Jackson's dr referred him. Then he sent me a copy of the paperwork he faxed in! Reading it was so sad! I know my little guy has been pretty sick! However I guess I just thought well it could worse... Reading the paperwork was devastating. Not that...
  16. ember303

    Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

    I do not, but I will be thinking of your family as you go through this
  17. ember303

    Princess Katyana's Wish Trip! Pre-Trip Report

    I will be thinking of her!!!!!!!!!! AND YOU!
  18. ember303

    Princess Katyana's Wish Trip! Pre-Trip Report

    AWwww she isnt feeling well??? I hate that for her. Hope she feels better soon!!!!!!




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