Hi, all! I'm the friend that TheMaxRebo helped, so I thought I'd make an appearance to help explain our unique situation. I haven't been on the boards in a few years, but I used to be a very active member and trip report writer, which is how I've met and befriended so many in the Disney community.
Our situation is definitely not the norm, let me start by saying that. There's no way that Disney could plan for every single set of circumstances, but I do know that Disney goes above and beyond to help every person enjoy a magical vacation, no matter what obstacles they're facing. That's why we return every year. It's the one place that we know we won't be made to feel "different" or "less," the one place that offers so many options from food to transport to lodging to attractions that we can be pretty flexible and still make sure our needs are met.
We have three kids, and our middle child, Brynn, is 8 and on the autism spectrum. She also has dystonia, but that isn't affected by the food situation at CBR. I'm not sure if people realize the vast differences between each person with autism. There are no predictors of what will bother them or what they'll fixate on; caregivers usually figure out these quirks and know how to plan around them for most instances.
Brynn has lots of sensory issues. We know this and always make sure she has her earmuffs to block noise, her chew necklace so she can put it in her mouth instead of dangerous random objects, a medical stroller/wheelchair where she can hide and block out stimulation, etc. We use the
DAS to maximize as much park time as she can tolerate, but there are lots of times she's just done with people and needs to go back to the quiet resort room. When she's like this, there's no way we can take her back out in public to get food--that would ultimately lead to breakdowns she can't control, and she definitely wouldn't eat. It would be a miserable situation for all involved: her, us, the guests around us. We avoid that.
One of Brynn's quirks is that she has several food aversions, and also gets on food "kicks" where she wants to eat the same thing over and over. There are lots of textures she simply cannot tolerate. She gags and cannot swallow the food. She is sensitive to temperature, as well. Besides fruit and ice cream, she likes her food to be warm food. She doesn't eat sandwiches, she doesn't eat anything with a sauce, she doesn't eat so many things. At Disney, we're lucky that we have lots of options. We can almost always find her something plain and warm and not "lumpy." Each park has lots of QS stops, and resorts have varieties of hot foods in their food courts, pool bars, and bakeries, or we can always go with the stand-by favorite of pizza delivery! We just never know what she'll point out that she's willing to eat, and we can never force her into something we choose for her. It's the nature of the beast that is ASD.
We booked CBR in October. At the time, we knew there would be construction affecting rooms near South Trinidad, and that was no problem for us. We have been in places before while construction was going on, and we blocked out any noise with her earmuffs. No big deal. If that had been the case, we would have stayed.
Disney did not file for the improvements to OPR until mid-January. They only told cast members the extent of what would be closing three days ago. There is no way we could have known. Shutters closing doesn't affect us; when we have to be in the room with her, we can't take her to a sit-down restaurant anyway. We're over-packers, so we don't mind the store being closed, as we probably bring everything but the kitchen sink! But with the QS options going away, finding her food would literally be impossible. At the food court, we could always get them to cook her plain noodles, warm bread with no sandwich ingredients, plain burgers with fries on a separate plate so nothing touches, boring chicken with no spices, etc. We've never had a problem, even though her choices are sometimes odd. Then we'd bring the food to her in the room. We have stayed at a resort (All Star Music, I believe) while the food court there was closed, but it was within walking distance of all the other All Star food courts, so that wasn't a problem. We were informed that CBR would have all food options gone, other than grab-and-go stations in different areas. We remember the grab-and-go areas from the ASMu closure: it was essentially all the things she'd never eat, like cold sandwiches, wraps, etc. (Food trucks were never mentioned, though their selection is limited even if they will exist there.) Yes, she could probably eat the fruit from them, but ten days on fruit alone is not going to work. With Centretown/OPR being closed, we also can't take things and heat them ourselves, as that's where the microwaves are.
Eating is a big enough ordeal as it is, and if we remained at CBR, it would involve sending a parent off property or to another resort/DTD to get her the foods that would normally be all over resorts, and then it would be cold by the time he returned, with no way to re-heat it. We asked about bringing our own food and putting a microwave in our room, but were told microwaves are not allowed in regular hotel rooms.
We don't care where we sleep. I told the first two people I spoke with that I was willing to sleep on a pile of dirt if it came with a food court and didn't cost me any more money. We've stayed at all levels of resort multiple times. To move down to a value, they'd have to give us two rooms or the family suite, which would cost us $700. POR, the only lateral move for us, was booked up during our stay in all room classes. Our only other options would be deluxe or DVC, which we simply cannot afford this year. In fact, this trip was kind of a stretch this year to being with, as I was just in the hospital over Thanksgiving, my son and husband have upcoming surgeries, and Brynn constantly has doctors' appointments and therapies. We felt that this trip would be the "light at the end of the tunnel" after most of our medical issues were taken care of, so we were willing to pay for it to give us something to look forward to. We're not in a position to pay more, though. The way we save for every Disney trip is to literally empty pocket change, loose bills, and gift cards given on holidays into a giant jar in our kitchen, and we do it all year between trips. We cannot magically come up with a minimum of $700 (the next option would have added $2300) in the approximately one month until full payment was due. If we'd known months ago, we could have done that. But not now.
I spent 2.5 hours on the phone with a lady at the number they told us to call if we had issues, and also with her supervisor. I won't go into lots of details, but those conversations were not magical at all. I've never been treated like that by Disney employees, and it all boiled down to pay more to receive the amenities you were promised when you reserved in the first place, or tough luck, cancel.
We're basically a walking free commercial for Disney--if you don't believe me, please check out our multiple trip videos in my signature! FREE ADVERTISING. I have also convinced so many people, especially in the special needs community, to vacation at Disney. I've been on podcasts. I'm a part of lots of groups. I give them lots of money every year! I've brought them thousands of dollars through other families I've helped convince and helped plan. And so yes, I took it personally when they essentially told me that none of that mattered, all over $700 they couldn't waive for a downgrade that would fit our needs. It felt like being betrayed by a close friend. I was not mad. I was hurt.
I do realize that for most people, the food issue won't be that big of a deal. They mostly eat at parks, or it's easy to load up and go somewhere else for food, or cold items and food trucks (if they exist) will suffice. If it weren't for Brynn, that would be us! We're kind of a unique situation, and they fumbled a bit when confronted with the problems staying at CBR would now pose for us. I WISH we could take the $75 off a night deal that people are now reporting, but even that does not remedy our situation. I never cry, EVER, but I cried so much. It just felt like one more thing that most people take for granted (eating) that autism was going to take from us. We were stuck, and we'd have to cancel unless they magically responded to my two long emails, which they still haven't done.
HOWEVER, TheMaxRebo is just Pixie Dust personified! He sent an email, they understood him and listened to him, and they contacted me to make sure we still get to go on our vacation by moving us at no cost. I'm not sure what he said to them that made them understand the position we were in, but whatever he said worked. He did what I couldn't do in hours of phone time and long-winded emails. I will be eternally grateful for him, because now we don't have to tell our kids they can't have vacation this year, and Brynn will never have to feel like it was her fault. Disney friends are the BEST friends.
I am not angry at Disney at all. Just reading some of your responses here makes me see that they're not alone in "not getting it," in not understanding why something like this would be such a big deal. Unless you've lived it, I don't think you can understand it. We're not complainers, We're not looking for hand-outs. We just want the chance to have a vacation like typical families. And thanks to TheMaxRebo, we will still get to do that come May!